Advanced Prostate with bone mets, new to the site.

[GoNapoli]

Thank you all for the education I have received from this site. Looking to hear from those who may have had similar cases and what types of treatments were done and other suggestions. My Father is 75 years old and was Diagnosed with Prostate Cancer Grade 9 with bone mets throughout the skeletal per the Bone Scan (May 2020). The bone mets is osteoblastic, but thankfully he hasn't had many symptoms (other than nausea) and his bone density still came back normal. He has no other health issues and does not take any other medications except for Flomax. All scans show it hasn't spread to to other organs. Day after diagnosis his Urologist started him on Bicalmutide for 30 days (which he completed) and he had a Lupron shot 6 days after diagnosis. He starts Docetaxel every 3 weeks for 6 cycles starting this Tuesday. His Oncologist agreed given his health that would be a good start, he also mentioned Erleada but that is always an option after chemo. Would love to hear any input or stories. Also, any success with natural treatments for hot flashes, or low energy due to the hormone treatment? Thank you all again for all your stories and stay healthy and happy!

[Tall_Allen]

That sounds like a great treatment plan.

Acupuncture has been found to be effective for hot flashes. Exercise can combat faigue.

[LearnAll]

The goal of the treatment is to get his PSA as low as possible and to get his Alk Phos as low as possible. As time goes by..we will find out the personality of his prostate cancer..it might be a "dove" or a "vulture" We will know by Prostate cancer's behavior in next 12 months.

Exercise/walking is best thing to reduce fatigue.

For hot flashes..Evening primrose oil, Meds like Zoloft, effexor or Gabapentin have been used with success by many.

[azulmsalas in reply to LearnAll]

Hi! Why do you say that in 12 months you can see what type of cancer it is? Oncologists always told my dad that he was aggressive (Gleason 8 and psa +100, 59 years)? Thank you

Azul

[Kaliber in reply to azulmsalas]

Welp ..... I responded to you azulmsalas , thinking you were Gonapoli ...yayahahahaya .... I’m just going to plead “ Lupron fog “ and say “ never mind ! “ , Roseanne Roseannadanna ...SNL.

Best wishes 💪💪💪✌️✌️✌️

Just too tired to:do it all over again yayahahahaya

[LearnAll in reply to azulmsalas]

Almost all patients are told that their PCa is aggressive in the beginning based on very limited info. People who were told they they will live less than 6 months are still alive after 10 years.

In first12 months of treatment, the true nature of the PCa emerges as we find out how low PSA falls (Nadir PSA), how low ALP falls , How low T falls (Nadir T)

How much improvement happens in physical health (performance status) , Does any unusual detour the cancer takes and so on. This availability of detailed information and behavior of PCa, can only give us a more reasonable estimate of aggressiveness and prognosis.

But this does not mean treatment should not be started ASAP....it means close monitoring in next 12 months is needed.

[azulmsalas in reply to LearnAll]

Thanks for your answer!!It really helps me a lot with all the information provided in this forum.

Azul

[GodsDog]

Sounds about right. I was diagnosed in February just before my 68th birthday, Gleason 9, PSA 68.63, one met to hip. Lupron, Bicalmutide, then Zytiga. Brought PSA down to .66 as of May. Start radiation in August and Will stay on ADT for 3 years.

I have a dear friend whose case and treatment plan is similar to your father’s- he’s Going strong 3-4 years later, numbers good. He explored naturopathic supplements, as have I, to support primary treatment and moderate side effects. Happy to share what I’m taking if interested. Healthy diet and daily exercise help a lot as well. Low sugar, non dairy, no red meat, lots of greens and fish.

[GoNapoli in reply to GodsDog]

Thank you for your reply my Father likes to read all the responses. Keeps him motivated, and yes would love to hear about supplements to help.

[TheTopBanana in reply to GodsDog]

You will stay of ADT for 3 years?

[GodsDog in reply to TheTopBanana]

yes

[TheTopBanana in reply to GodsDog]

Interesting, thank you! Been reading so much about continous vs intermittent ADT. My father also has G-9 with mets, I hope he can have breaks too!! Also: will you have radiation to met + prostate bed?

[larry_dammit]

Welcome to the club, sounds to me like your oncologist is on top of the process, the hot flashes are terrible the higher the humidity gets, my daughter got me a hand he’d fan to carry from Amazon. Really helps. My oncologist gave me a script for Effexor for my depression and the hot flashes. That helped my mood swings and decreased the length of the hot flashes. Good luck with the monster, 🙏🙏🙏

[SPEEDYX]

Sounds like a good plan...I chose lupron and zytiga over chemo...now after 18 months PSA has gone from 350 to 15...all of our journey's have similar components but we have our own unique battles to fight with side effects etc...🙏

[SUPERHEAT12]

I was diagnosed in 2003, Gleason 9 (5&4). After years of hormone treatment under Dr.

Myers, took a "vacation" in 2015. PSA went up, bone scan showed mets in many places including the skull. Dr. Myers put me back on hormone treatments, psa went down, bone mets did not grow and have never bothered me. I still ski and play golf regularly. Found out that some scans have a hard time differentiating between mets and arthritis. I have gone strong for a long time but now take no "vacations".

[TheTopBanana in reply to SUPERHEAT12]

Wow wonderful that you are doing well!! If you mind me asking: what hormone treatments Have you been on? My dad is a gleason 9.

[CalBear74]

If your father is open to natural supplements, please see my previous posts.The most important supplement I take, and have for four years, is IP6. Please read Dr. Shamsuddin’s book on his cancer research and IP6. He is the leader in cancer research on the supplement. Go to Amazon: “IP6 and Inositol “ by Dr. AKM Shamsuddin, Prof. Of Pathology, Univ. of Maryland.

I am a Gleason 8, diagnosed in 2012, and have been treated with Lupron for eight years. I am not yet resistant to Lupron. I have never had surgery or radiation. My prostate was not removed because I had two Mets to the pelvic bone. No other metastases were identified. A DRE completed a few months after I started IP6 in 2015 could not find any cancer nodules in the prostate. My Urologist was very surprised. Two years later after moving to Florida my new urologist also could not identify any cancer in the prostate when using a DRE. Initially he was very skeptical of my medical chart’s claim of no nodules in the prostate. I thought his DRE would never end.

[Boywonder56]

Exercise.....and earleada......did i say get up and move around....oh yeah and welcome to club noone wants to join....luprechons for the most part..

[j-o-h-n]

Greetings GoNapoli, So tell us a bit more about your Dad. Location? Treatment Center(s)? Doctor's name(s)?

All info is voluntary but it helps us help your Dad and helps us too. Thank You!

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 07/13/2020 12:28 PM DST

[GoNapoli in reply to j-o-h-n]

We are in South Florida, my Father actually lives in Stuart, Fl but his Doctor is from the University of Miami; Dr. Singal. My friend from work has been going to him for five years now and he comes highly recommended and it has been a great experience so far. Dr. Singal is very patient and all the staff around him is very attentive and caring.

[j-o-h-n in reply to GoNapoli]

Thank you for your quick and detailed response. You may wish to copy and paste that information into your Home Page so that you and others may refer to it..... Give your Dad my regards and best wishes.

Good Luck, Good Health and Good Humor.

j-o-h-n Tuesday 07/14/2020 10:13 PM DST

[Scoofer33]

The posts above include many good solutions to treat hot flashes. You may want to ask your Father’s medical oncologist to prescribe what he feels will help your father deal with them. Thank you for hanging out on this site to learn all you can to help your dad. It is very admirable that you honor him in this way!