Sacral mass

[Farn]

I have something called a sacral mass on my sacrum with lesions in S1 & S2 as my metastatic site I’m on Enzalutamide and Zoladex which has kept everything at bay for the last 6 months since diagnosis

My concerns are that being where it is it likely to leave me wheelchair bound I can’t get any real answers from my oncologist

He has said that the mass hasn’t shrunk and he was going to give radiotherapy to the prostate and the metastasis

Now he’s only going to do the prostate

Has anybody else got the same metastatic site and if so what courses of treatment have you had

Thanks in advance

[ragnar2020]

Hello Farn,

Yes, I learned last week that I have a similar lesion on my sacrum. I’m taking Tramadol for the pain and preparing to get SRT at the Roberts Proton Beam Center at UPenn in Philly. The PBT will also target that met. My PSA reached .21 in May, and a PSMA PET CT revealed the lesion in June. I am not on ADT yet, and because of CAD, I’m trying to stay away from it.

[Farn in reply to ragnar2020]

Thank you for your response good luck with your medication

[SteveTheJ]

FWIW, my MD Anderson oncologist advised that using radiation for bone cancer is like firing bullets at concrete.

[Farn in reply to SteveTheJ]

Well that certainly creates an image

[Hidden]

I had what was diagnosed as a "sacral fracture" and was in a great deal of pain. Eventually, we discovered that the prostate cancer had morphed into the rare variant squamous cell carcinoma ncbi.nlm.nih.gov/pmc/articl... that was merrily chewing through the sacrum undetected since squamous doesn't emit PSA. When I had a bone biopsy done there, the doc described the sacrum as "moth eaten". Treatment was 5 sessions of radiation over 5 successive days. Pain was gone in a couple of weeks. The radiation worked wonders in my case. Now all I feel in that area is numbness so it's still a weak spot. Went in for a bone scan yesterday as follow-up to my just-ending four months of Docetaxel-Carboplatin chemo so we'll see if that worked on the cancer in that area and pelvis.

[Farn]

Thank you for sharing your situation I hope that things go well going forward.