I'm new here! Let me give you my background.. I'm 70 years old and was dx in September 2021,Gleason 9 - 4+5 / pT3bN1M1), PSA 198 with Pet CT PSMA F18, MR, Bone Scan.
No bone mets but multiple pelvic lymph nodes are positive and 5-6 distant lymph nodes in the abdominal region. Started ADT with Eligard shot, Abiraterone, Prednisone,Pantoprazole on Oct 15th.
On 23rd of November had new tests and PSA dropped to 6.8. I was elated by such a drop and upon a visit to my Dr he suggested radiation therapy.
I spoke with two Radiation Oncologists of which one suggested SBRT to the prostate and seminal vessels. My concern is how does that effect the lymph nodes which are not treated?
The other spoke with other doctors who confirmed being faced with a situation being out of the SOC because of the 5-6 distant lymph node mets where the STAMPEDE states max 3 distant mets. Being this situation and my excellent initial results with ADT they agreed upon continuing with ADT and beginning of February have another PET-CT PSMA to see if the distant mets reduce to 3 and then analyze what radiation will best. Probably SRBT to prostate and include distant mets.
Has anyone been through a similar situation with distant lymph node mets and what treatment was taken and how effective is it?
The situation is not easy because I understand the ADT can shrink the cancer but not kill. Is this true? If so Radiation seems like the next step.
We have LU-177 available here also but I was told to save this option only if needed.
I am doing everything I can and have the support of my wife and family but would greatly appreciate hearing about any experiences or information to help me take the right steps in this fight for survival and quality of live!
May all have a good Xmas and all the best!!