Good morning everyone. I received a call yesterday postponing my 5th dose of Xofigo for a month. My WBC is too low .74 even though I’ve been getting booster shots each week for the last 6 weeks. I have to admit this is a little frustrating to have to wait at least another month to have a PET scan to find out how the Xofigo is working.
Has anyone else had this experience? I remain hopeful it’s being effective. You all remain in my prayers as we continue this fight.
Hope you all have a better day today
BT3
Written by
BigTex3
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Hang in there sir. I have been following you. Wish I had some help to offer you.The experiences of your journey might be of help to me some day so I appreciate you going thru RA-223.
Just quit if you need too of course.
Yes, I too wish you could get a scan sooner to see the progress.
I am optimistic especially in light of your reduced pain (aside from the increased pain for a week after each infusion) that the mets are "shrinking" as they say.
Thanks for your words of encouragement. We have no choice but to stay the course and play the hand we’ve been dealt. I thank God each morning for another day.
Thanks for the reply. How many treatments have you done so far or are you finished with all 6? I’ve also lost 30lbs since starting. I do attribute to radically changing my diet and loss of appetite.
Sorry about the bump in road! Husband just had his 3rd Xofigo and has been able to cut down on pain meds!Will follow you for your progress with this treatment! Prayers
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