I agreed to take part in a clinical trial (S1802) a couple weeks ago, and with that came another round of scans, more blood draws, a chat with a urologist, and a chat with a radiation oncologist. My bone scan had a lot fewer dark spots this time around, and the report said 'mets are less conspicuous'. T is 11, PSA is still below their detection limit, ALP is 67. All relatively good news.
I was randomized into the additional treatment arm of the trial, and I didn't want the prostatectomy so I picked the radiation. This last Monday I spent almost an hour in the gynecologist chair, with an ultrasound wand in my exit port while two ladies poked needles in my perineum. Another day of humiliation, there have been a lot of them. Three tiny gold markers were placed near the prostate, and she was going to put the gel in between my prostate and rectum to help protect my rectum from radiation. However, because of 7 months on ADT my prostate (and testicles, of course) has shrunken, my anatomy has changed, she decided that placing the gel may cause a rectal ulcer, so no gel. I go in next Tuesday for a CT simulation, to see if the markers have moved and to see if I can hold my water long enough for the radiation treatment. I will get my treatment schedule then, should be 5 treatments with a day between each, and it will probably be before the end of the month.
yesterday was birthday number 56, the first one after diagnosis. I'll have to say, much less happy than any other birthdays I've had. But, we soldier on, sexless and hairless.