Hello everyone,
I'm posting for the first time but reading this forum every day for a long time. So I feel like I know all of you personally.(Inhouse Dr Tom Allen, Wimpy, Patric from Australia , Humorous J-O-H-N and many others.) I believe no one (not even doctors) understands our pain, physical as well as emotional better than people over here. My hats off to all the compassion you all show to other fellows.
My Case:
Age 72. First diagnosed with advanced PCA October 2019.
Biopsy results: 5 of 12 GS 10, 2 of 12 GS 9 and 5 of 12 Benign.
PSA 3.5.
Scans Results: Only one Met Increased uptake in S1.
Genetic test: negative
My case was reviewed by three MOs and it was concluded that although I have a high Gleason score, based on CHAARTED and LATTITUDE I have low volume low risk disease (no visceral involvement, 1 site of bony disease).
Treatments: Followed STAMPEDE trial
1)Lupron shot every 3 months effective December 2019.
2) Abiraterone 1000mg effective January 2020. But changed to 250 mg with a low fat breakfast since June 2020.
3)Radiation to Pelvic 4 weeks
Results:
04/14/20 PSA<0.03, 06/09/20 PSA<0.03, 07/31/20 PSA<0.03 & 09/30/20 PSA<0.03
Testosterone <3 ng/dl
Scans: 05/02/20 & 09/02/20
Less uptake in S1. No evidence of new bone metastasis disease.
Side effects due to ADT: Very little. No Fatigue, no weight gain.
Life Style: Walking 5 miles/day + light weight.
Thank you to all of you.