One Year Results: Hello everyone, I'm... - Advanced Prostate...

Advanced Prostate Cancer

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One Year Results

Pheart2 profile image
14 Replies

Hello everyone,

I'm posting for the first time but reading this forum every day for a long time. So I feel like I know all of you personally.(Inhouse Dr Tom Allen, Wimpy, Patric from Australia , Humorous J-O-H-N and many others.) I believe no one (not even doctors) understands our pain, physical as well as emotional better than people over here. My hats off to all the compassion you all show to other fellows.

My Case:

Age 72. First diagnosed with advanced PCA October 2019.

Biopsy results: 5 of 12 GS 10, 2 of 12 GS 9 and 5 of 12 Benign.

PSA 3.5.

Scans Results: Only one Met Increased uptake in S1.

Genetic test: negative

My case was reviewed by three MOs and it was concluded that although I have a high Gleason score, based on CHAARTED and LATTITUDE I have low volume low risk disease (no visceral involvement, 1 site of bony disease).

Treatments: Followed STAMPEDE trial

1)Lupron shot every 3 months effective December 2019.

2) Abiraterone 1000mg effective January 2020. But changed to 250 mg with a low fat breakfast since June 2020.

3)Radiation to Pelvic 4 weeks

Results:

04/14/20 PSA<0.03, 06/09/20 PSA<0.03, 07/31/20 PSA<0.03 & 09/30/20 PSA<0.03

Testosterone <3 ng/dl

Scans: 05/02/20 & 09/02/20

Less uptake in S1. No evidence of new bone metastasis disease.

Side effects due to ADT: Very little. No Fatigue, no weight gain.

Life Style: Walking 5 miles/day + light weight.

Thank you to all of you.

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Pheart2
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14 Replies
Tall_Allen profile image
Tall_Allen

Sounds like great results following the SOC!

Magnus1964 profile image
Magnus1964

Congratulations, you're doing great. You gotta love those numbers.

ConcernedCaliMom profile image
ConcernedCaliMom

That’s wonderful news!!!!! Keep up the exercise, I believe it truly helps. Wish my dad had done more weights!!!

SPEEDYX profile image
SPEEDYX

Results are good.....and I like your exercise regimen. The warriors here will serve you well...With the great info and humor led by J-o-h-n!!!

j-o-h-n profile image
j-o-h-n in reply toSPEEDYX

So now I have a reputation that I have to live up to, so here goes....

CAPITAL LETTERS:

The difference between helping your Uncle Jack off a horse and helping your uncle jack off a horse,

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/17/2020 10:29 PM DST

Kaliber profile image
Kaliber

Good for you brother ... those are great numbers, hoping you can keep them rolling. 💪💪💪💪👍👍👍👍

JimBarringer profile image
JimBarringer

The numbers look good and just as important the attitude sounds very good. Looking forward to annual reports far into the future.

MateoBeach profile image
MateoBeach

Welcome Pheart2. Great results from prompt and appropriately aggressive treatment. Glad to have you on board and cruising so well.

Life5 profile image
Life5

Hi congratulations on the great results :). I have a question - with a low PSA such as yours - why did your doctor recommend scans ? Our doctor said a scan is not required/won’t show anything at such low PSA levels ?

Pheart2 profile image
Pheart2

First one was done on 05/02/20, five months (delayed due to Covid, usually 3 months) after the treatment started. Second scan was done 09/02/20 , four months later. next one will be after six month and if that’s clear then every year. At least that’s what my MO told me. My guess is SOC is different in every country as well as by each MO. :-)

j-o-h-n profile image
j-o-h-n

Greetings, If you're Pheart2 who the hell is Pheart1? Thank you for mentioning me and humor in the same sentence. It's my hobby and keeps my mind off of jumping out of my basement window.. Keep posting here.... there is a wealth of knowledge from the members here and it's free..... BTW where are you located? Keep Smiling...

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 10/17/2020 9:45 PM DST

Shooter1 profile image
Shooter1

Mighty fine looking bunch of grapes. Do you have a vineyard???

Canoehead profile image
Canoehead

You may be in a long term remission, which is a term that people use, because most, but not all, oncologists say that systemic disease cannot be cured. Regardless, you are a candidate for an ADT vacation in 6-12 months. Keep up the great results.

Pheart2 profile image
Pheart2

I have no idea where that picture of beautiful grapes came from. Although I must admit I love and enjoy good wine. Been to all over the world to enjoy that. But at present where I live not famous for wineries. Go Buckeyes! Got the clue J-O-H-N?

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