PSA 466

I'm a member of the psp group as well

My husband PSA is gone up to 466 and because no treatment of any kind will be done because of his other disease of progressive supranuclear palsy.doctor said yesterday my husband has been on borrowed time for a while.

Just trying to figure out time of progression of his cancer without treatment

Gleason 3+4=7Post OP 4+3=7

PSA .PO RP .004

05/08 PSA 0.05

07/08 -0.09

10/08 -0.16

01/09 -0.24

RT March 2009

07/09 PSA 0.4

09/09 PSA 0.55

12/09 PSA 0.52

03/2010 “ 0.7

06/10 “ 0.61

09/10 “ 0.8

01/2011 PSA 1.07

03/2011 PSA 10 ,9/2011 PSA 2.40

10/2011 PSA 2.60.PSA 10.3 in Aug 2012 started HT treatment PSA drop to 0.01 after 2 month of HT

Feb2013 PSA 0.01

Bone scan showed matatasi in two areas possible 3rd December 2019

Stop all treatment due another devastating disease called Progressive Superanucler Palsy

2020 psa 466 and bone metastases psa up from 299 in October 2019.

[Hidden]

Not sure if it's my tablet but its hard to edit on here now.

Thanks for reading .

Dee in BC

[Blair77]

Your husbands other condition says life expectancy 7-10 years. The PC will take him a lot faster with no treatment. Why did they say they couldn’t continue treating him?

[Hidden in reply to Blair77]

He is into his 11th year of psp and is pretty much wheelchair bound,eating abilities are diminishing as well.

Not a good situation. He did really well on ht until the last few months but then it wiped him out pretty bad.

[Blair77 in reply to Hidden]

I’m so sorry, that does sound like a very tough situation. How do they plan on controlling his PC pain without treatment?

[Hidden in reply to Blair77]

Talk of radiation at this point for pain,still trying to wrap my head around this at this point.

[Tall_Allen]

With no treatment? Probably 2-5 years, so it may make more sense to at least maintain hormone therapy, since the supranuclear palsy has a longer expected survival.

[Zetabow]

He cannot have treatment because his body-brain wouldn't cope with ADT or Chemo drugs?

I took surgical option subcapsular orchiectomy and no need for ADT drugs, might this be an option for him?

[Shanti1]

Some men on this site are using estrogen patches to successfully control their prostate cancer, perhaps that would be an option he could tolerate. They generally report fewer side effects and better quality of life. Here is some information on this approach: journalofclinicalpathways.c....

Some doctors will be concerned about blood clots when giving men estrogen, but it doesn't appear to be a concern when used transdermally instead of orally.

[Hidden in reply to Shanti1]

Thank you,will do some more reading 😊

[Hidden]

So much suffering for one man . He must love you much . I pray for him to not suffer and find peace. His other disease sounds horrible .. Please keep yourself up also . 🙏