I will pray to be the last PC shot for you ever. And if it’s not, then you will be like Waren Buffet. He was 90 yesterday I think and he had PC when he was 80 so I guess if you get another shot when you are 90, you wouldn’t mind :-). congratulations on the undectable psa.
Well I really hope it does. I might end up in a similar position if I am lucky enough. I have had three PSA rises post SRT to prostate bed following RP. PSA is still c 0.05 but with next test later this month. I am hoping for a lymph node so that I can have another go via radiation and ADT combo but in truth I don’t know where it is and need PSA to rise before it has a chance to be detected. Anyhow I really keep my fingers crossed for you and hope it works out. Good luck!
Well, not that this tells you anything you don't know, but as your T rises, your PSA will either rise or it won't. I'm hoping for the best. In fact (as my doctor told me), "I'm going with 'you're cured.'"
If it *does* comes back, there are ADT regimens that don't carry the full impact of continuous Lupron. You may want to Google tE2, bipolar ADT, IADT, Axumin scan, and Relugolix.
If you can kick the can down the road long enough, there will be other technologies coming along as well.
An onco has a unique view of this? We buy time if we are lucky. The important thing is to live for today . Like the warriors creed . Eat drink and be merry , for tomorrow we face war . At least you are on horseback .,I’m on foot with a shield . Be well the “ man called horse” a favorite movie as a kid . Take care dear Sir... pluck the day ! 🙏✌️
Thank you Ron! I would not have posted this except for the PSMA Scan showing after my 2nd recurrence only one iliac pelvic lymph node lit up. After radiation of the entire pelvic region and Lupron for 2 years the "theory" is "maybe" it's gone. I am realistic but like your observation my road has been much less rocky than others. I am prepared to take on the beast again as needed. Best wishes!
We will be discussing my BCR - but a very brief conversation during my last 'telephone visit' suggested that there might be some 'activity' in the pelvic area that might be zapped.
WE hope / suspect that a few lymph nodes have grown since my initial Dx and treatments.
I had some initial pelvic hot spots, so it makes sense to think that this might be the area that has triggered the BCR.
My last Lupron shot was in July of 2018. I don't want any more Lupron - it drove me NUTZ !
A more sensitive scan makes sense, seeing as my PSA is probably about 4.0 (was 3.2 a few weeks ago).
I'm not driving the agenda right now, but I believe the 'right options' will be on the table for discussion and hopefully, an action plan.
I might be a Zytiga / RT candidate - I used to think I could be migrate to a bicalutamide mono-therapy, but that is not SOC in my country - so that might be unlikely.
I'm fortunate enough to have access to a center of excellence.
I hope your provider will allow the scan and you can pinpoint your treatment. You have done your homework and that I believe is a great confidence builder. Good luck and best wishes for your treatments and outcomes!
There was mention in your original (un-edited) response to me, of a PSA reading greater than 5.0. to 'qualify' for the scan. On this page, that reference is gone. Can I assume that you removed that portion ?
If 5.0 is something you stand by, where did that come from ?
Either way, I expect to get past 5.0 in a short period of time because my PSA rate of change is nearly doubled every 3 months.
It was suppose to be 0.5 but after reading it found it not to be germane to our discussion so deleted the sentence. I will look forward to hearing good news on this board in your upcoming posts.
Maybe Moespy ? Just remember some men have used Lupron for 12 yrs or more . Lupron sucks as does all adt . They deplete us . IMO most damage is done in the first two year . Then extended damages with extended use of adt . Maybe ,you can take a break .? No one has suggested it for me . Watch that Psa . Many MO ‘s will stay the course on adt until it fails. Being undetectable is good for us . Stay under the radar .
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Ok to take a Lupron Vacation?
ADT Holiday to Locate and Zap Metastases?
PSA slightly up after salvage radiation
I'm new here. Introducing myself.
Has anyone experienced an under active thyroid while on Lupron? If so, how was it treated?
