The Waiting Game/Post 5 weeks of Radi... - Advanced Prostate...

Advanced Prostate Cancer

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The Waiting Game/Post 5 weeks of Radiation for Oligomatastic (3 spots) Prostate cancer after 4 years+ of Stage 4. During "Quarantine"

greatjohn profile image
47 Replies

I started my radiation just in time to get almost 1/2 way through before the lock downs and the push backs on anything not necessary, so I got all 5 weeks finished a couple of weeks ago. Two lymph nodes and one small "superficial" spot on my left pelvic bone.

Today was bloodwork and Xtandi and Xgeva...first ones after the radiation. Two days from now (Thursday) I have my Zoom visit with the oncologist. The last couple of weeks of radiation brought quite a bit of stomach and intestinal discomfort....nausea, diarrhea, pain and fatigue. It continued for the first week after also..but I am feeling pretty much back to how I felt before already now.

A few days ago decided to make a commitment to living ....LOL...five more years...

**I took out my FIRST EVER car loan on a new Honda SUV. I put way over half down as financing still scares me....but I did finance for 60 months ....FIVE YEARS.... a decent amount. It helped that the interest rate was the LOWEST Honda ever gives. I now feel I have an "obligation" to live 5 more years. It's a good feeling plus I have wanted their SUV for the past 2 years. Life really does keep going...I've lost friends to the coronavirus already, and to other things since my Stage 4 journey started....and "I'm still standing". Ediam~~Every day is a miracle.

**Picture is of me at Infusion center about to get Lupron. Had to be a selfie as we are not allowed anyone in the hospital facility with us any longer...so my partner was waiting in the parking lot in the new car...

P.S. as my mantra has always been "you never be too rich or too thin".....I'm proud to announce that I have managed to lose 10 pounds during this(and it was due to me trying not to gain) Most of it AFTER the radiation because they told me NOT to lose during radiation.

Feeling blessed, enjoying staying home & hoping & praying the best for everyone.

gJohn

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greatjohn
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47 Replies
noirhole profile image
noirhole

Glad to hear from you and that you are doing well. A new car always smells wonderful and 60 months is nothing. Ride in comfort. Hope all labs come back excellent.

greatjohn profile image
greatjohn in reply tonoirhole

😊 Thanks. Happy trails.

Daddybearblue profile image
Daddybearblue

Prayers and may you have no more than five years. 🙏🙏. Arlis

greatjohn profile image
greatjohn in reply toDaddybearblue

did you mean (LOL) "no more than five years"....hopefully WAY more than five years.

Daddybearblue profile image
Daddybearblue in reply togreatjohn

I hate auto correct. When I really hate it is when you have correctly entered what you intended to say and watch

it correct as you hit send

greatjohn profile image
greatjohn in reply toDaddybearblue

Ha ha ha... I know what you mean 🥰

greatjohn profile image
greatjohn

having faith and having a spirit of thankfulness are ingredients for a happy life...and I believe happiness is the best medicine. I've weathered so many storms (including those with a life expectancy attached) over the past 40 years that I am amazed every day when I awake. It's VERY hot here in South Florida....even (trying to be) thankful for that....LOL

gJohn

SuppWife profile image
SuppWife

So good to hear from you! Congrats on the new ride and completion of your radiation! ❤️👍

greatjohn profile image
greatjohn

Thanks so much ....hope your husband's doing great!

gJohn

SuppWife profile image
SuppWife

Thank you! He’s doing well! ❤️

ctarleton profile image
ctarleton

Enjoy that new ride, greatjohn, and crank up that A/C when you may need it for any hot flashes. (I thought I was doing well a couple of years ago when I boldly renewed a magazine subscription for 3 whole years. Ha. Ha. )

Charles

greatjohn profile image
greatjohn in reply toctarleton

We’re brave heroes 😎

RalphieJr64 profile image
RalphieJr64

A new car always brings good feelings. I don't what you look like behind your mask, but the rest of you looks pretty darn good. God Bless, good luck John.

greatjohn profile image
greatjohn in reply toRalphieJr64

Thanks Ralph... lol..my profile pic on here was before the quarantine. It’s a full face. Keep on keeping on.

Fanger1 profile image
Fanger1

Maybe it's time for Scooby Snacks again? Woof Woof. Glad you're feeling good and driving a new vehicle. Stay well in Florida 😺

fmenninger profile image
fmenninger

That great news GJ! The hell with 5 years, you will end up buying it out and outlive your Honda, which is a hard thing to do. I have a 97 Honda Odysssy with over 200K miles and it still truckin. Stay safe and carry on...

greatjohn profile image
greatjohn in reply tofmenninger

Lol... and I bought an extended warranty just to really have an even longer goal🤪

monte1111 profile image
monte1111 in reply togreatjohn

Extended warranty made me laugh. That's what I need ... an extended warranty. Maybe I'll have some fun today and apply for a few Life Insurance Policies. That's gotta be good for a few laughs.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

make me the beneficiary.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/22/2020 4:35 PM DST

Good job getting thru Rt. I hope that you recover well and benefit from it . I think if I do buy another car it will be my last one.. Now you’re committed to a five year loan you must stay around to pay it off .. 😂Your good spirit will

Always shine through .. Heal up brother! 🙏🕊🕊

Flash64 profile image
Flash64

Thanks for sharing GJ. Congrats on the new car. I always look forward to your posts and expect to see them for way more than 5 years!

greatjohn profile image
greatjohn in reply toFlash64

Thanks so much for your incredibly lovely words...and happy trails to you on the journey 🥰

Collarpurple profile image
Collarpurple

Ha you now are Obligated to continue to live once you sign the financial paper. Glad to hear you’re feeling better❤️🙏

Schwah profile image
Schwah

Great uplifting post John. You’ve been thru a lot. Your attitude is an example to us all.

Schwah

GreenStreet profile image
GreenStreet

All the very best to you. We wish you way more than 5 good years!

Haniff profile image
Haniff

Hi Greatjohn

Looking cool there Brother. So happy for you. I like your style bro of buying a big ticket item and paying it for the next 5 years. Aha... going to try that excuse With my wify and get me a new ride 🤔

Anyways enjoy your new set of wheels and your good lease on your healthy progression. Good to have you back on the chat Bro. Take care and keep us updated ❤️

Haniff

Ron53 profile image
Ron53

Did you get the Pilot or CRV? Honda has one of the best lane assist systems (autopilot) I have tried...if you can find an uncrowded highway to use it.

greatjohn profile image
greatjohn in reply toRon53

The CR-V EXL. The auto pilot features and the cruise control are amazing 😉

tom67inMA profile image
tom67inMA

Great to hear! It bothers me greatly that some cancer patients can't get tests or treatments due to concerns about Covid-19, particularly in areas where it isn't widespread and they're laying off hospital staff. Madness! Meanwhile here in Massachusetts we're 3rd in the nation for Covid-19 and cancer treatment appears to be going on as planned for me and others (albeit with masks and telephone followups and SOs waiting in cars (but can come inside to use the rest room thankfully))

My weight plummeted during radiation, as much food went through me unchanged. It stayed down over a year. Now that I'm in chemo again the weight is coming back on after a brief loss in the first cycle. It makes no sense!

greatjohn profile image
greatjohn in reply totom67inMA

Funny you mention bathrooms...my partner has to bring along a bottle to pee in and we park way out at the end of the parking lot by the trash cans🤪

Newyork6264 profile image
Newyork6264

Good luck. Here's to next that 5 year loan on the replacement.

Jackpine profile image
Jackpine

Great report, Great John,

I like the five year plan, I think more of us need to think like that. Great post and keep fighting!!!

Peace Brother!!!!

greatjohn profile image
greatjohn in reply toJackpine

my new radiation oncologist has talked about "in 10 or 12 years"....something my old oncologist never even "hinted at"....so ....it

is nice to have hope!

gJohn

Peterd110 profile image
Peterd110

Congratulations, John!! I hope you wear that thing out ( which will take a long, long time! )

vforvendetta profile image
vforvendetta

God bless you, John. Congratulations, and thank you for continuing to share your story. You always bring a smile to my face.

Survivor1965 profile image
Survivor1965

I like your 5 year financing goal! I have a motorcycle but have wanted a new Harley for a while. You’ve got me thinking.. which is hard to do.

All the best!

greatjohn profile image
greatjohn in reply toSurvivor1965

Lupron makes thinking .....wait, what was I talking about? LOL

Nicanor profile image
Nicanor

You should have instead taken out a 10 year loan so you would be obligated to pay and live for 10 years as opposed to 5. Glad you are in good hands.

Good Luck John

greatjohn profile image
greatjohn in reply to

Thanks did you finish your radiation? Hope it went well.

monte1111 profile image
monte1111

Sounds like things are finally going well. Hope everything keeps on going your way. I'm going to go buy a house.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

make me the co-oowner...

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/22/2020 4:41 PM DST

monte1111 profile image
monte1111 in reply toj-o-h-n

Well greatscott. If you want to invest I'm all in. I'm currently looking at a nice house with a lovely view of the Leaning Tower of Pisa.

j-o-h-n profile image
j-o-h-n in reply tomonte1111

Great... I'm leaning towards investing.... I have loads of Encyclopædia Britannica stock as collateral to invest.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/22/2020 7:37 PM DST

j-o-h-n profile image
j-o-h-n

Good Deal.... In your CRV you will notice a small tab near your gear shift lever (hard to see). If you should ever get stuck in gear just flip the tab open and stick a medal object in it (your key. my key anybody's key or just a piece of metal) push down on it (DO NOT TWIST IT) to get out of gear..... You may never have to use it but it's good to know about it....

May your next car be a 2026 Jaguar convertible....used only at night in Florida....

Keep on driving...........

CRaVe.....

Good Luck, Good Health and Good Humor.

j-o-h-n Wednesday 04/22/2020 4:48 PM DST

Bobcat64 profile image
Bobcat64

Way to go great John. I m beginning Proton therapy on the 30th. My dx sounds very similar to yours. Thanks so much for your posts you have been an inspiration. Love the hat. God Bless

tallguy2 profile image
tallguy2

Really an excellent report after dealing with the side effects of radiation. Enjoy your new ride!

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