Lupron--every three months? or every ... - Advanced Prostate...

Advanced Prostate Cancer

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Lupron--every three months? or every six months?

j5000 profile image
9 Replies

My dad's doctor wants to start him on the Lupron shot every six months. However I feel like most people I've heard about have it every three. Can anyone willing share with me what regiment they are on and why they are on it?

Background about my Dad:

Diagnosed 10/1/2019. Mets to pelvis (fracture of the pelvis), spine and ribs.

10 rounds of external beam radiation on pelvis and base of spine

10/4/2019: received Firmagon and Xgeva Shot (monthly)

11/1/2019: started on Abiraterone.

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j5000 profile image
j5000
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9 Replies
noirhole profile image
noirhole

Every 6 for me. Basically more convenient.

timotur profile image
timotur

I chose monthly shots to reduce SE's... but it's a PITA though.

j5000 profile image
j5000 in reply totimotur

May I ask what SE's are?

Tall_Allen profile image
Tall_Allen

Lupron is available as 1 mo, 3 mo, 4 mo, or 6 mo. It's just based on convenience. Unless he is doing intermittent ADT, he might want to consider orchiectomy instead.

Jimhoy profile image
Jimhoy

My regiment was 3mo Eligard (Lupron equal) of which I followed for a while! My T was 18 and PSA was <0.1 (=undetectable) throughout.

Missed 2mo’s changing Dr’s and side effects and was forced (quid pro quo(long story)) to resume treatment. At that point (5mo into a 3mo deposit) my T and PSA was the same.

I Completed my 18 mo (20mo’s actual) and started monitoring. 6mo’s later, my #’s are unchanged! Full blown ADT.

Added another 6 months and just starting to recover (T 103 / PSA 0.1).

Summary

3 mo deposit kept me ADT for almost a year. You can ask you Dr why there are only 1,3,4,6 mo dosages and they’ll tell you “its the manufacturers recommendations”!!! Why would want all that extra drug in you system if you don’t need it?!!! If I had known, things would have been different!!

Lupron ONLY chemically castrates you!!!! NOTHING ELSE other than side effects! How about 3mo depot with blood work at 4 or 5 mo’s?? Go from there!!! Maybe you can go 6mo’s on that dose!!!

Some men don’t have issues with this drug, some get their a$$’s kicked.

My opinion!!

Jc

Every three months for me. Corresponded to blood work and quarterly MO appointments. Note: for two years I had monthly blood draws, then every two months, and then quarterly. I was moved to semi’s one time, didn’t like it.... I missed the quarterly........ :)

GD

DarkEnergy profile image
DarkEnergy in reply to

I'm on the same track, every 3 months for Lupron, Zometa, blood draws and MO visit session.

Since you miss the quarterly, I'll work on making you my surrogate and cover the visits for me... ;)

j-o-h-n profile image
j-o-h-n

Instead of every 3 months I have mine quarterly.....

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 12/07/2019 12:04 AM EST - “Day of Infamy”

Victorq1 profile image
Victorq1

Hi j-o-h-n

Well,

my neighbour started Lupron ,just once a year, in his 70

and lived to 90.

I guess you know my story with Nilandron (Nilutamide),

which replaced Bicalutamide( my Oncologist claimed the Bicalutamide no longer works)

and the side-effect of Nilutamide

namely Chemical Pneumonia almost killed me.

Than a decision was made

use Lupron only as a Mono-therapy.

That increased my PSA from 2 to 20 , to 32 ,within one year.

Now the Specialists are suggesting Chemo with Doxytaxel.

But wait--

I have no symptoms or pain.

I handle Lupron now, almost without hot flashes.

(Since I have been treated in two countries) ,I am suggesting

to return to Canada, where CT,Bone Scan and may be PET Scan

can easily be done.

If they are positive ,

THAN

I will agree to further treatments or chemotherapy.

I solicit advice of all

if this is a right decision?

Thanks !

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