Real increase in PSA

[Costarica1961]

Hey, I Hope all is well in our club nobodys wants to be a member of. I have posted in the past when my psa increased while on zytiga 17 mos and lupron. Those were minor up ticks such as 0.009 to 0.006 etc two months ago it went to 0.5 now today 1.51 this acceleration is concerning. I have done rad prostectomy 6/2016 37 radiation now zytiga 17 mos negative margins gleason 9 pinuel invasin one side. I understand treatment are slim at this juncture. Although its not my nature to wait and see. What can i do I understand xtandi is a option, immuno therapy. I just went through weight loss surgury lost 40lbs eating perfect daily exercise. I hate the idea of waiting to experience pain further mets now non detectable im sure there micro Any thoughts suggestions to combat the demon cancer.

Thankyou you guys,

Rik

[Tall_Allen]

1. Get a PET scan - if you have just a few metastases, you can zap them with SBRT

2. Because you are castration resistant and not detectably metastatic, you qualify for Nubeqa (darolutamide).

[Costarica1961 in reply to Tall_Allen]

Thankyou i was hoping to hear from you, I will inform the oncologist of these options. And set up a pet scan. Could the major surgery have a effect on my rise in PSA.?

THANKYOU

RIK

[Tall_Allen in reply to Costarica1961]

I don't know how it would do that.

[VictoryPC]

Do intermittent Lupron with PCSPES.

[Shanti1 in reply to VictoryPC]

PCSPES has not been for sale for years, it was pulled off the market due to drug contamination. As far as I can tell, after it was pulled, other versions appeared, eventually morphing into what today is known as Prostasal. I have had two men tell me that they were able to control their prostate cancer with Prostasal but they had side effects like breast tenderness and loss of libido (unfortunately, they didn't check their hormones while on it). Looking at the formula, it doesn't make sense to me that the botanicals in there would have the effect that people report. My husband tried it and immediately felt like he did when he tried the estrogen patch, he discontinued it after 3 days. Personally, I think it is spiked with a synthetic estrogen.

[VictoryPC in reply to Shanti1]

I've been on it for 6 years and my PSA was 54 and now stable at 3.9 for 3 years now.

[Shanti1 in reply to VictoryPC]

Hi-

I didn't realize you could still find PCSPES. Here is information on the original formula and the three medications it was found to contain. The DES in the formula would have the ability to control prostate cancer, at least for some time.

academic.oup.com/jnci/artic...

cancer.gov/about-cancer/tre...

[VictoryPC in reply to Shanti1]

Yes true. The new stuff is pure. Interesting though is my own oncologist uses DES mow on CRPC patients when all else stops working.

[Currumpaw]

Hey Costarica1961!

Sorry to read your post.

Tall_Allen had some good advice.

Dr. Klotz is recognized as leading urologist by his peers. He was the one that gained acceptance for Gleason grades 2 through 5 to eliminated as there was no difference in how these grades progressed.

When speaking at a urologist's conference Dr. Klotz put a graph on the screen of one of his patient's experience with hormone resistant prostate cancer. Go to the 14 minute mark to get right to it in the video.

It isn't a cure but seemed to keep the man's prostate cancer on a leash as long as he dosed himself. Maybe keeping it on a leash isn't all that bad.

youtu.be/-JpHkqg8j-8(Not working as expected?)

Currumpaw

[monte1111 in reply to Currumpaw]

Very good video. I am going to find my long lost bottle of Vitamin D. Until someone again tells me it doesn't do any good. And more hot peppers and hot sauces for sure. Enjoy.

[Costarica1961 in reply to monte1111]

Thankyou how can it hurt