Tickets for conference and I joined t... - Advanced Prostate...

Advanced Prostate Cancer

20,966 members26,120 posts

Tickets for conference and I joined the Foley club

Fuzzman77 profile image
6 Replies

It appears the conference next week is sold out now. I am over in India and just had a prostatecomy 3 days ago so I won't be going, and obviously won't need the 2 tickets I purchased. If someone is looking for a couple of tickets I'd be happy to offer them for $75.00 for the pair. Don't worry about the service charge. PSMA PET last week still showing it as complete resolution of all mets except for the primary so had it out and will be making more vaccines hoping it can at least control it longer now. The surgeon did take some seminal vesicles so praying they r negative for cancer. Not a fun surgery but the worst part is over now. Hope the conference is good for everyone.

Chris

PS Someone wanted to see my PSA chart from here. If it's you let me know. Been a very busy last few weeks.

Written by
Fuzzman77 profile image
Fuzzman77
To view profiles and participate in discussions please or .
Read more about...
6 Replies
LearnAll profile image
LearnAll

Just curious ...where are you getting your treatment and what has been your experience ?

Fuzzman77 profile image
Fuzzman77 in reply to LearnAll

Medanta Medicty in Gurgaram, Haryana(New Delhi). APCEDEN vaccines made from my own tumor thus using my tumor antigens. It's been a long road but I really believe with more vaccines etc I just bought myself some good time and quality of life.

podsart profile image
podsart in reply to Fuzzman77

Congrats

Why did u choose that location ; where do you live/ do you know anybody in that region?

is that vaccine SOC in that location ?

What are costs of your treatments there?

Fuzzman77 profile image
Fuzzman77 in reply to podsart

I chose here simply because it was available. I wanted a true autologous dendritic cell vaccine made from my own tumor. I had something very similar 23 years ago for kidney cancer that had metastasized to the bones stateside but that treatment called TVAX has not been available to humans for years, just horses, dogs, and cats. TVAXBiomedical.com. I wouldn't call it SOC yet but more and more private hospitals are offering it now. Cost of 6 vaccines is appx $12,500.00. If you're on a tight budget PSMA PET scans are $315.00 at an imaging center so are a couple hundred less than at Medanta. Everything is marked up more for int'l patients. Just had a prostatectomy the other day there and cost was about $10,500.00, which included everything and 5 days in a private room. Was done with The Davinci robot. Dr. Narmada Gupta was my surgeon. You can read about him on their site.

I live just north of Scranton, Pennsylvania and had had Sloan Kettering, Rutgers, and Cleveland there was nothing more to offer me. was dx'd 8/2014 with PSA of 212, Gleason 9 with mets up to my neck. Last Lupron 1 month shot was 1/2016. Stuff was brutal on me.

podsart profile image
podsart in reply to Fuzzman77

Thanks

Fuzzman77 profile image
Fuzzman77

Got pathology back Monday for the prostatectomy. Everything was contained in the prostate and some was even benign now. They actually have declared me cancer free. Seminal vesicles came back as no evidence of malignancy. PSMA PET showed complete resolution except for in the prostate. It friggin worked. I am actually in remission. I am continuing vaccines for a while as I imagine there are CTC's but without having to fight the primary anymore and the fact we already know I am a responder they believe I will be OK now. Time will tell, but damn everybody I can hardly believe they have classified me as in remission. There is hope!!!!!!!

You may also like...

I’m new to a Foley catheter.

problems. Note that I’m home and off the IV and now constipated and I haven’t seen much urine. I...

In 2016 I joined this ADV Prostate Cancer club. My forward path is dark, uncertain, and full of fear. I seek info on what to expect.

Gleason scores 7, (all samples) high volume. PSA around 24.5. Surgeon recommended a robotic...

I Just Joined a Wrestling Class Because I Am Now Stage G

wrestling Gustave is in my future....I choose Gustave now in 2018 and I could have chosen Gustave...

Prostate Cancer Patient Conference

com/e/prostate-cancer-patient-conference-treatment-strategies-for-living-longer-tickets-62954069316...

well...home from Holiday...AND, In spite of the Foley catheter and a few other set backs along the way...made it the whole 5 weeks.

earth...so it's been in me 6 weeks already....and will be for ANOTHER week. It's time to change it...