So a bit of background my husband was diagnosed last November PSA 167, Gleason 9.
He finished 6 rounds of chemo in May and is due to start whole pelvic radiotherapy in August. The CT and bone scan showed an enlarged prostate obviously and one pelvic lymph node.
His consultant is like a robot with no emotion/compassion/encouragement at all. Whilst he was recently in with pneumonia he commented that his latest CT scan shows the lymph node is more or less back to normal, PSA less than 0.1 so as expected. That was it.
I'm doing this whole thing by myself and feel a huge sense of responsibility for his life. He's currently on Prostap.
Is there anything else you would be doing?
Did the chemo shrink the lymph node so it's gone?
His consultant is so dismissive, I would of liked more encouragement after 8 months of hell. Is this a good response? You're doing well etc but as we're in the UK we can't hire and fire dr's and my husband is ok with him.
We can't get abiraterone in the UK yet but wonder if it's worth paying for privately after radiotherapy.
Thanks for any thoughts.
Yes, the chemo can shrink the affected lymph node. I assume he is stil on hormone therapy? If he gets pelvic radiation now that is all you need to do. Save the Abiraterone for the time when hormone therapy does not work anymore.
Thanks. Yes he is still on HT.
I'm really hoping that the chemo got any micro Mets and radiotherapy will sort prostate and lymph node.
I would also like him to have a more precise scan and LU177 but PSA is too low (long may that continue)
Suppose I'm just talking aloud as it feels so lonely and I have all these thoughts in my head.
"got any micro Mets" Personally, as an advanced PCa patient, I do not think you will ever get them all. You just can give the PCa a hard time so you will live for a very long time.
Thanks GP24, o really appreciate your time and sure hope so. I'm really struggling with this as I'm sure you all are.
Thanks for your time already.
I was just reading your posts on LU177 and the great response you had.
I guess this isn't possible to have with an undetectable PSA as psma won't show?
With Lu177 you treat what you see on the PSMA PET/CT. If you see nothing, nothing will be treated.
My response was unusual and I suspect it had to do with the adjuvant Bicalutamide I took during the treatment and a few months after that.
Thanks and what treatment are you on now?
Just observation - no ADT. My PSA is 0.13 now and I take a break from treatments.