Lost Another Round

[Stegosaurus37]

June 2017, urination difficulties, Foley catheter took care of that. Biopsy and diagnosed Gleason 9, Gleason 9, Gleason 9, etc. Stage 4, metastases to bones, so surgery, radiation were out. Lupron "That will shrink the prostate so you can pee again." Nope. Still needed catheter and PSA went from 19 to 45. I'm castrate-resistant. Finally insisted on a TURP and after 160 days got rid of that stinking catheter (they changed it once a month, the first time they took it out you could have heard me scream in Seattle) and now I pee like a 15 year old. Bliss.

On to docetaxel which droves the PSA down as long as I was on it, but started going back up as soon as I went off. Then Xtandi and the PSA continued going up. I'm also Xtandi resistant. Off Xtandi beginning of December 2018, started TRITON II clinical trial Feb. 2019 (rucaparib, PARP inhibitor), off that end of March 2019 since it had no effect - my PSA kept going up. Getting evaluated for VISION clinical trial (Lu-177) on Tuesday. That's kind of the last gasp. If that doesn't work, not much else.

You really have to admire my cancer - it is TOUGH! I've named it Godzilla - one tough monster.

No pain but lots of fatigue. I understand there were studies at MD Anderson and Mayo which showed ginseng can be effective against cancer-related fatigue. Since ginseng is an herbal supplement, they can't make any claims, but I'm going to try it and will report.

Please note ginseng is not supposed to due anything for the cancer but just mitigate the fatigue side effect.

[Hidden]

Wisconsin ginseng is good. Zilla is the eight hundred pound gorilla in the room . You’ve really punched back . Hope you get on the test and it works for you ...You deserve a break. ... f’n PC , keep punching ,I want that Lu-177 to knock zilla out for good... K.O. .🦍🥊

[NPfisherman in reply to Hidden]

Me too...knock that sucker out of the ring .... They are combining AC-225 and Lu-177 I believe in Germany... whatever you choose, may it work exceptionally well for you... Hang tough, Steg.....

Fish

[whatsinaname]

I am in a somewhat similar position. Have failed radiation, casodex, eligard, docetaxel, and the latest, abiraterone. All over just 13 months.

Am now trying Lu-177 as I am PSMA avid. Lets see what happens.

Good luck to you, Steg. All the very best.

[Stegosaurus37 in reply to whatsinaname]

And best to you! It's a ding-dong good fight now - let's give it all we've got and then some!

[erjlg3]

Hope the Ginseng helps the fatigue Stegosaurus. Wishing, hoping and praying that something helps you to rid the monster.

Most sincere,

🌼Jackie

[tallguy2]

Sending my best wishes. Your are really fighting this miserable disease with everything they are offering you.

[Magnus1964]

Keep your vitamin D3 up, 1000 i.u. per day. You can find more supplements to try on this site.TThey are not cures but they can slow that gorilla down.

[tdouds]

Steg, in my case the Wisconsin Ginseng doesn’t give me more energy (per se), but it lets me go longer before I hit the wall, which let me get more done...every situation is different - just an FYI in case you don’t think it’s working for you...

[Lombardi24]

I feel your pain Steg. My cancer is resistant to almost everything I've tried

[j-o-h-n]

Since your'e some kind of prehistoric "Saurus" (who speaks English) you should be able to kick the shit out of Godzilla (who only speaks Japanese - remember we beat em in WWII). The secret to removing a Foley without causing pain is to have a nurse yang it out while you're dead... That's the type of pain I would want my ex-wife to feel while I take a vacation to Seattle just to hear her scream.

Well you are keeping up a good fight and you deserve at least two stars ⭐⭐ (sorry not three, I'm the only one who ever gets three).

"ginseng" - youtube.com/watch?v=vgfUE13...(Not working as expected?)

Good Luck, Good Health and Good Humor.

j-o-h-n Sunday 04/07/2019 3:43 PM DST

[Hidden]

Of course the “ Babe” didn’t have APC , But he had more strike outs than home runs. ..just got to keep swinging Stego . I’m pulling for a miraculous home run fo you ..

[Hidden]

Green teas and matcha tea I appreciate.

[monte1111]

Crossing my fingers for you, and whatsinaname and Patrick-Turner. And everyone else. And me. Good luck.