13 Months went well...

[leo2634]

Good morning Brothers' I had my 13 month exam and Doc says he couldn't be happier with my results. All of my numbers are good, scans show significant improvement to Mets, lymph nodes and surrounding areas.

We spoke for quite awhile about different drugs and therapies on the horizon. Doc says some really promising things are in the works and it really made my day. All in all it was a very positive visit to say the least.

For those of you that don't know me to well my diognoses was as follows:

02/18 Advanced Prostate Cancer Gleason 7, 8,9, across the board , multiple Mets and two lymph nodes invaded. My first and only line of treatments thus far are:

Zytiga,Prednisone, six month Eligard, and monthly Xgeva for bone Mets. Probably Provenge in the near future but Doc says I'm responding so well let's just stay the course for now. I hope you all have a fantastic Summer and remember. Never give up never surrender. Leo

[leo2634]

My insurance and Medicare cover all but about $500.00 to $1000.00 monthly according to what tier I'm in catastrophic wise now it's down to $200.00 because I'm on the generic. I also have a health care case worker assigned to me from my Doctors staff that helps me acquire grants as they become available. I couldn't be more pleased with my Doctor and his staff they treat me like family and Doc told me never worry about the money he told me I will never leave his office without being treated they will work out the money end.

[whatsinaname in reply to leo2634]

Amazing doctor, indeed. Quite unlike the doctors I encounter here.

Good for you !! Cheers !!

[sjc2 in reply to leo2634]

Wow, very different from my DH doctor! May I ask where you live and the doctors name?

[leo2634 in reply to sjc2]

South New Jersey Dr Gordon Brown of New Jersey Urology

[sjc2 in reply to leo2634]

Thank you so much for the info., but it's nowhere near us, oh well! So happy for you!!

[JamesAtlanta]

Congratulations! Such great news - thanks for sharing!

Best regards,

James

[NPfisherman]

Congratulations...may Zytiga work for you for a long, long time...

All the best,

Fish

[whatsinaname in reply to NPfisherman]

Zytiga has already FAILED for me. In about 30 days, my PSA has shot up from 11.3 to 13.5 to 16.33. A rise of 44.5%.

Now, my last roll of the dice : Lu-177.

Lets see what's in store. Remission or death ??

Cheers !!!

[NPfisherman in reply to whatsinaname]

Sorry to hear this... some are using the AC-225 in Germany I believe as well ...Hoping this works extremely well for you...You have had a tough road from the beginning....may God be with you at this challenging time and give you strength and peace, and a durable remission for a long time... Hang tough, brother...

The very best of luck with the new treatment...

Fish

[whatsinaname in reply to NPfisherman]

Thank you, Fish.

Whatever will be, will be. The future's not ours to see. What will be, will be.

Cheers !!

[monte1111 in reply to whatsinaname]

Doris Day is 97 years old and still truckin' Wow!

[monte1111 in reply to whatsinaname]

Better be remission. You owe a lot of us dinner. Just remember I'm a presbyterian and don't care for fish.

[Hidden]

Fantastic news.. Thank you . Now you can enjoy your summer also .

[noirhole]

Congratulations summers coming have some fun. Act 21 again. Don't forget to laugh every day.

[Jbooml]

Nice Leo..

When i was diagnosed last fall after disregarding my symptoms for years I thought I was a walking dead man....but lo and witness...I was once again misguided...i completely recovered on first line ADT. We have much to celebratete...

Keep up the good fight...we all rejoice in your success.

[OldFart81]

Fabulous report, Leo. Good for you and praise for your urologist.

[Filotimo62]

Great news...gives hope to others!

[whatsinaname in reply to Filotimo62]

The drugs/treatments react differently with each individual.

What works for leo2634 may or may not work for others.

[leo2634 in reply to whatsinaname]

This is very true. The key is my treatment was not of choice I trust in my Doctor 100 % he is truley a compassionate professional with my health and the health of his patients first and foremost. I had no idea that my life would take such a drastic change in just a year but it did and I'm so grateful for this man's dedication to me. I wish all the best and will pray for you as I do for all the Brothers on our forum. Leo

[whatsinaname in reply to leo2634]

Thanks, leo2634.

[j-o-h-n]

Leo.... You Roar............................................................ (congrats)

Good Luck, Good Health and Good Humor.

j-o-h-n Friday 04/05/2019 9:33 PM EDT

[Boywonder56]

Great news....i am in titan trial ...they just unblinded it and im on and have been on earliga(aplutimide ) for 18 mos...psa rising all so slowly....but feeling 85%.....this stuff too is expensive...12k mo...but getting inthis trial was good...hope evryone has peaceful days

[JavaMan]

Great to hear the good news!

[monte1111]

Great news. Keep it coming.