Good news. Hope it can help others. - Advanced Prostate...

Advanced Prostate Cancer

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Good news. Hope it can help others.

BillyVolt profile image
21 Replies

Hello fellow warriors.

I’m 52 , was diagnosed in July 23 with stage 4 PC , mets to bones and lymph nodes. Psa 258 , Gleason 9.

Just met with my MO for latest scan results.

PSA has steadily gone down, currently 0.17 . Lymph nodes are clear. Still have mets to several areas to bones but holding steady.

Did 6 rounds of docxitacel , Nubeqa twice a day, Lupron once a month.

Radically changed my diet and lifestyle from the moment I was diagnosed. Try to get rid of stress

No sugar, no alcohol, no bread, no red meat, no processed foods whatsoever. As much organic fruits and vegetables as possible. Herbal teas

Daly walks, meditating, praying. Lots of love and support from family and friends.

Hope this helps

Good luck.

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BillyVolt profile image
BillyVolt
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21 Replies
DAR1890 profile image
DAR1890

I am so very happy to hear of your latest findings! You are such an inspiration ❤️❤️

Cape1 profile image
Cape1

👍. GREAT NEWS! I’m right there with you for plant based diet, and I’m having a similar remission, taking my PSA down from 125 April ‘23 to <.006.

What about exercises? . I’m a big believer in HIIT, and also BOUNCING/ bounding, either on trampoline or deep end of pool…to move lymph.

JohnInTheMiddle profile image
JohnInTheMiddle

Bravo Billy! You're on a great program if therapy! And great radical changes. No bread too - I miss that! We're both here doing the low-carb thing. BTW if you're doing the low-carb systematically - for deep metabolic reasons possibly - it's worth looking into the sugar content of fruit - lots of energizing fructose! 😃

JL1955 profile image
JL1955 in reply toJohnInTheMiddle

Message unclear. You are against fruit?

dhccpa profile image
dhccpa in reply toJL1955

I'm on plant based diet. I've had no problem with whole fruit, but I do wonder if I should scale back.

Others are more critical of fruit, but I've had no issues over 4.5 years.

JohnInTheMiddle profile image
JohnInTheMiddle in reply toJL1955

My wife and I try to keep our carbs quite low. Fruit with its fructose sugar is tricky. Modern fruit is unlike fruit hundreds or thousands of years ago. Modern fruit has its massive flesh due to breeding.

Apparently fructose is metabolized differently than glucose and there is a concern documented in many papers about this. Especially in the context of ADT, weight gain risk, especially adipose fat, might be a worry. In my case I have borderline metabolic problems.

spw1 profile image
spw1

well done. Keep it up.

dhccpa profile image
dhccpa

Encouraging! Best of luck!

JL1955 profile image
JL1955

are you doing any supplements or off label drugs?

BillyVolt profile image
BillyVolt in reply toJL1955

I have not taken any supplements but thinking about it. So far I’ve just been eating organic fruits and vegetables, nuts and beans, juicing fruits and vegetables and drinking a bunch of different herbal teas. Also taking Metformin to lower glucose and low dose of amlodopin for high blood pressure. I think that by keeping my body healthy and strong with diet helps the medicines work better and less side effects.

TwilightZone profile image
TwilightZone

I have the books that describe the diet you're following, but have not started following diet. Guess I had better start.

j-o-h-n profile image
j-o-h-n

Quite a jolt...........(my diet consists of whatever I crave to the grave - and as the saying goes "one man's food is another man's poison")....

Good Luck, Good Health and Good Humor.

j-o-h-n

JL1955 profile image
JL1955

what conventional treatments have you had beyond ADT and docetaxel?

Radiation? Surgery?

Your metabolic protocol sounds similar to that of Jane McLelland or Chris Wark

BillyVolt profile image
BillyVolt in reply toJL1955

I haven’t had any other treatments as of yet. Although I’m not following any specific protocols I did read both of their books But the one book I like to listen to over and over again is Radical remission by K.Turner

SeosamhM profile image
SeosamhM

Awesome, BV! Keep on keepin' on!!

Don717 profile image
Don717

Good for you! I did the same but 2 years before my diagnosis...I just sensed what was coming I guess? I'm very strict on the weekdays but have a bit of a "diet vacation" on weekends. No junk, but I might have a piece of pita bread with a good Greek salad. Enjoy some beer on weekends as well but in moderation, maybe 4-5 Fri-Sun? I've lost 72lbs in 4 years now. Also bought a treadmill and run 2 miles every night. Lift weights every other day...just basics, squat, deadlifts and bench pressing. Good luck on your program bud...very impressive.

Kevinski65 profile image
Kevinski65

Gleason 9, psa 31, stage M1, 3 bone Mets , 2 on spine , one on sternum. 2012 I was 59 now 71, so roughly 10 years out. Treatment was lupron and Xtandi basically. Casodex briefly for flair. Still on Lupron and Xtandi, psa .04 last check. Scans showed Mets drying up, lung tree in bud came and went. Other factors , retired at 62, took a basket load of different supplements and aspirin. I’m still doing that mostly zyflamend for prostate. Also take desimpramine for depression with Prozac and Wellbutrin. I also take Lipitor and celebrex on and off. Do get bone pain alternate between Tylenol and aspirin. I took noscapine , motherswort and 4mu for awhile. Starting getting expensive cbc oil, lots of blueberries, Pom juice, raspberries, tart cherry juice. Still here….

BillyVolt profile image
BillyVolt in reply toKevinski65

Thats awesome Kevin. It always helps to hear positive stories to keep us going.

Kevinski65 profile image
Kevinski65

Sorry I’m not gloating. The first thing I did was look at a list of doctors who got PCa and what they did to lengthen their’ lives. Many retired within 2 years of diagnosis. This was to lessen cortisol from stress. Then standard treatment was done along with supplements, diet and clinical trials. Then I looked up what I was currently taking, it turns out desimpramine, lipator, and celebrex had anecdotal evidence of slowing down PCa. I’m well aware the next shoe could drop tomorrow. There’s also the fact that there are genetics, psa at diagnosis, and on and on. There is much about PCa that they don’t know. It’s impossible to guess how long someone with this disease will live. So carry on fighters of PCa.

bandgeek profile image
bandgeek

Good for you Billy. You go!!!!!

Retireddoc profile image
Retireddoc

Good for you! Keep up the work and good luck!

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