FIRMAGON LUPRON NOW ZYTIGA PSA

[SPEEDYX]

NEW TO THE FORUM.....APPRECIATE ALL YOUR INFORMATION AND SUPPORT....DX JAN 8...2019 STAGE 4... 3 PELVIC METS...LYMPH NODES INVOLVE...PSA 347 JAN 8...FEB 8 PSA 22 ON FIRMAGON...THAN SWITCH LUPRON FEB 8.....STARTED ZYTIGA MARCH 1....PSA ON MARCH 22 PSA 26....TESTOSERONE 0....WILL PSA GO DOWN...SEEMS LIKE A BOUNCE WHEN I STARTED ZYTIGA?

[Magnus1964]

Many patients get a PSA bounce when starting a new treatment. This is due to cancer cells dying off.

[SPEEDYX in reply to Magnus1964]

THANKS MAGNUS ALWAYS NERVOUS WITH THE UNKNOWN....ALL IN MY PRAYERS TOO!!!

[leo2634]

Welcome Speedy I've been on Zytiga 13 months now PSA has been undetectable since first month. You will definitely have some life style changes but the key word there is " Life". Zytiga isn't a. Wonder drug but has worked wonders for me. Never give up never surrender. Leo

[SPEEDYX in reply to leo2634]

Will do...Thanks Leo

[braddockroad in reply to leo2634]

I've been on Zytiga and Prednisone since June 2018. Have you ever had diarrhea on this?

[SPEEDYX in reply to braddockroad]

No all good so far....take 7 in morning with18 oz. of water....also take magnesium citrate everyday helps keep normal bowel movements...worth a try

[tarhoosier]

Enough with the shouting. Stop the All Caps, please

[SPEEDYX in reply to tarhoosier]

yes sir 😊

[Mam1214]

I’m sorry for your recent diagnosis. My dad has been on zytiga along with lupron for over a year and it’s kept his psa below 1. It affected his liver enzymes at first so they had to play with the dose but it is still working. Hope it continues for a long time! Good luck.

[SPEEDYX]

Thanks....we all in it together....learning so much and appreciate the support!!!

[NPfisherman]

Welcome to the forum that we all wish we never had to join...I am fairly new to this also and the PSA is called the prostate specific anxiety test for a reason around here...You are new to Zytiga--give it some time....I bet your next test is lower...

Ask questions--it's all new and hard to cope with as a newbie...Initially, I could not sleep at night...If you are not sleeping, then try some melatonin, that helped me...I started with 5 mg...at 15 mg now...sleeping well...

Try and get some exercise--release of endorphins helps... Do not read the survival statistics for Stage 4 Prostate Cancer put out by the American Cancer Society...1) It has not been updated in 5 years and there are many new drugs available, 2) No one can predict your date of departure, so stop worrying and enjoy living....Do something fun with loved ones or friends, enjoy nature, etc...Good luck...

All the best,

Fish

[SPEEDYX]

That's the best advice....I do work out 3x a week...have a lot of energy ..feel good no symptoms...may try melatonin...hot flashes wake me up

[Baldy123 in reply to SPEEDYX]

Talk to your Dr about your hot flashes. Mine were terrible until he put me on a pill. Don't have the name of it right now but I haven't had any HFs in 6 months since taking it. No side effects. I'll get the name of it when I get home.

[SPEEDYX in reply to Baldy123]

Thanks would be interested

[Baldy123 in reply to SPEEDYX]

Its called Medroxyprogestorone. $10.0 a month on Good rd coupon. Works very good. Good luck

[SPEEDYX in reply to Baldy123]

Thanks...I will check out

[TEBozo in reply to Baldy123]

We all would be interested in the name of the pill-Gabapentine?

[SPEEDYX]

THANKS BILL

[j-o-h-n]

Give us more info about yourself please. All voluntary (lower case too). Post on a future post and not to me. (location, age, treatment center, doctors names). Thanks. This info helps us help you and helps us too.

Good Luck, Good Health and Good Humor.

j-o-h-n Saturday 03/30/2019 12:19 PM DST

[SPEEDYX]

Will do

[Tommyj2]

PLEASE!!!! Lets NOT start a thread about " shouting".... there is no indication that the caps in question were any form of shouting and the individual who took issue would best be allowed to express his opinion and then we move on.

Also.... please don't reply to this post or we could end up wasting a LOT of time.

[Khoakim]

Don't panic, my husband got stage 4 postate cancer in 2016. On jan 16, 2019 his oncologist told him that his cancer growing and spread to his t10,pelvic, lymph nodes. He has to stop all his med and wait for his radiation and chemotherapy. 2 weeks to wait he has to suffer from bones pain. He met with the nures and the symptoms control team to planning for his last step to prepare. The palliative coverage card for his pain killer pill was given. But now he is doing fine. He doesn't has to take any pill for his pain. He has 2 times chemotherapy without any side effects. He doesn't has to worry about 21 days circle of chemo. His taste is not changing because now he use his own energy in his body to wake up all the lazy cells to work. He use his own energy to active his immune systems . He uses his energy to eliminate the pain. You too you can do it. Energy in your body it is free. It is very power full. Because for the last three years his cancer growed and push up his ureters. His urologist inserts the ureteric stents for him . But when his cancer is growing back the ureteric stent not works to his body any more. His urologist planing to put nephrostomy for him but since he use his energy to heal , his ureters open and the pain is gone. His oncologist wants to do his bone scan again in may 9,2019. It doesn't hurt. It is free. You too 👍👍👍 you can do it. You have to take your medication and the treatment combined with your energy you will fell much better . After that your body will tell you what you need, just listen to your body. If you need any help i am always happy to guide you step by step. By the way you have to stop to eat sugar and red meat. Try to eat more green and drink 1 cup of hot fresh lemon juice 1/2 hour before each meals. I am hopping the next bones scan of my husband will be a good one. We always pray for everyone.

[SPEEDYX]

Thanks for all advice....I will pray believing that your husband will have positive results

[Khoakim in reply to SPEEDYX]

Thank God , we are so tear happy when my husband got his bone scan result yesterday, the metastasis from his pelvic and his t-10 and the lymph nodes are clear now. But his oncologist wants him to continue to finish his circle of chemotherapy then he will do his bone scan again. You too don’t give up use power of you mind to heal yourself

[SPEEDYX in reply to Khoakim]

Great News!!!! happy for you and your husband...prayer works

[RonnyBaby]

I note that other forms of treatment haven't been mentioned (must assume there aren't any yet).

I recall that I started with a PSA of 300 +.

Dx was Gleason 9 (biopsied) and Node Positive (May 2017).

Radiation and ADT was the chosen path.

Then after some initial treatment (casodex) I dropped to about 180 (June 2017).

Got a TURP in late July 2017, after prostate size was reduced.

By Feb of 2018, after a few months on Lupron, I landed around 4.1.

Anything below 1.0, for a patient on radiation treatment is considered successful (in relative terms of course).

Then, 3 months later I was close to 'undetectable' at 0.04 (Apr 2018).

Tomorrow, give or take a day or two, I celebrate 'nearly 1 year' at the undetectable level (<0.002) .

I'm now in a watchful waiting mode after coming off ADT in October 2018 (risky perhaps, but hoping I am one of the more fortunate ones that beats the odds).

NB: for some who may have seen my past posts, I must apologize for something that I erroneously stated.

I thought I was Stg 4.

Recently, I was lucky enough to see my records displayed on a PC while I was getting checked out by a specialist who left the room (Ooooppps) .

Turns out I'm T3b.

Still aggressive and advanced, but no sign of Mets yet.

I'm feeling better as time progresses.

Changed my diet, getting lots more exercise and taking some supplements.

Sorry about my apparent ignorance. I guess the pressure got to me before I was properly informed. My oncologist never gave me a number to relate to - so I assumed the worst .....

[SPEEDYX]

No worries....it is important that you reach your goal Iam trusting and praying you will stay there a long time.....you will be on my list....thanks

[TEBozo]

Who is the Doc that put you on Zytiga?

[SPEEDYX]

Dr Aghalar out of Commack mskcc