NEW TO THE FORUM.....APPRECIATE ALL YOUR INFORMATION AND SUPPORT....DX JAN 8...2019 STAGE 4... 3 PELVIC METS...LYMPH NODES INVOLVE...PSA 347 JAN 8...FEB 8 PSA 22 ON FIRMAGON...THAN SWITCH LUPRON FEB 8.....STARTED ZYTIGA MARCH 1....PSA ON MARCH 22 PSA 26....TESTOSERONE 0....WILL PSA GO DOWN...SEEMS LIKE A BOUNCE WHEN I STARTED ZYTIGA?
FIRMAGON LUPRON NOW ZYTIGA PSA - Advanced Prostate...
PLEASE!!!! Lets NOT start a thread about " shouting".... there is no indication that the caps in question were any form of shouting and the individual who took issue would best be allowed to express his opinion and then we move on.
Also.... please don't reply to this post or we could end up wasting a LOT of time.
Welcome to the forum that we all wish we never had to join...I am fairly new to this also and the PSA is called the prostate specific anxiety test for a reason around here...You are new to Zytiga--give it some time....I bet your next test is lower...
Ask questions--it's all new and hard to cope with as a newbie...Initially, I could not sleep at night...If you are not sleeping, then try some melatonin, that helped me...I started with 5 mg...at 15 mg now...sleeping well...
Try and get some exercise--release of endorphins helps... Do not read the survival statistics for Stage 4 Prostate Cancer put out by the American Cancer Society...1) It has not been updated in 5 years and there are many new drugs available, 2) No one can predict your date of departure, so stop worrying and enjoy living....Do something fun with loved ones or friends, enjoy nature, etc...Good luck...
All the best,
Don't panic, my husband got stage 4 postate cancer in 2016. On jan 16, 2019 his oncologist told him that his cancer growing and spread to his t10,pelvic, lymph nodes. He has to stop all his med and wait for his radiation and chemotherapy. 2 weeks to wait he has to suffer from bones pain. He met with the nures and the symptoms control team to planning for his last step to prepare. The palliative coverage card for his pain killer pill was given. But now he is doing fine. He doesn't has to take any pill for his pain. He has 2 times chemotherapy without any side effects. He doesn't has to worry about 21 days circle of chemo. His taste is not changing because now he use his own energy in his body to wake up all the lazy cells to work. He use his own energy to active his immune systems . He uses his energy to eliminate the pain. You too you can do it. Energy in your body it is free. It is very power full. Because for the last three years his cancer growed and push up his ureters. His urologist inserts the ureteric stents for him . But when his cancer is growing back the ureteric stent not works to his body any more. His urologist planing to put nephrostomy for him but since he use his energy to heal , his ureters open and the pain is gone. His oncologist wants to do his bone scan again in may 9,2019. It doesn't hurt. It is free. You too 👍👍👍 you can do it. You have to take your medication and the treatment combined with your energy you will fell much better . After that your body will tell you what you need, just listen to your body. If you need any help i am always happy to guide you step by step. By the way you have to stop to eat sugar and red meat. Try to eat more green and drink 1 cup of hot fresh lemon juice 1/2 hour before each meals. I am hopping the next bones scan of my husband will be a good one. We always pray for everyone.
Thank God , we are so tear happy when my husband got his bone scan result yesterday, the metastasis from his pelvic and his t-10 and the lymph nodes are clear now. But his oncologist wants him to continue to finish his circle of chemotherapy then he will do his bone scan again. You too don’t give up use power of you mind to heal yourself
I note that other forms of treatment haven't been mentioned (must assume there aren't any yet).
I recall that I started with a PSA of 300 +.
Dx was Gleason 9 (biopsied) and Node Positive (May 2017).
Radiation and ADT was the chosen path.
Then after some initial treatment (casodex) I dropped to about 180 (June 2017).
Got a TURP in late July 2017, after prostate size was reduced.
By Feb of 2018, after a few months on Lupron, I landed around 4.1.
Anything below 1.0, for a patient on radiation treatment is considered successful (in relative terms of course).
Then, 3 months later I was close to 'undetectable' at 0.04 (Apr 2018).
Tomorrow, give or take a day or two, I celebrate 'nearly 1 year' at the undetectable level (<0.002) .
I'm now in a watchful waiting mode after coming off ADT in October 2018 (risky perhaps, but hoping I am one of the more fortunate ones that beats the odds).
NB: for some who may have seen my past posts, I must apologize for something that I erroneously stated.
I thought I was Stg 4.
Recently, I was lucky enough to see my records displayed on a PC while I was getting checked out by a specialist who left the room (Ooooppps) .
Turns out I'm T3b.
Still aggressive and advanced, but no sign of Mets yet.
I'm feeling better as time progresses.
Changed my diet, getting lots more exercise and taking some supplements.
Sorry about my apparent ignorance. I guess the pressure got to me before I was properly informed. My oncologist never gave me a number to relate to - so I assumed the worst .....