Just booked my husbands Mayo Dr. Visit - Advanced Prostate...

Advanced Prostate Cancer

20,993 members26,161 posts

Just booked my husbands Mayo Dr. Visit

Kimmilemo profile image
10 Replies

Going to Mayo Mar 4th , seeing Dept head of oncology and nephrology Dr. Greggory. They said he works with Dr. Kwon. Couldn’t get a appointment with the urologist yet. They said my husbands psa needs to be at 1.25 before they will make a appointment.

Headed to our hometown urologist we use when we’re not at our current choice of treatment CTCA Zion. My husbands nephrology tubes coming from his kidneys are infected, in a lot of pain.

Then we will see our oncologist and urologist and cardiologist at Zion Ill feb 5th.

Also trying to set something up with a Dr. here at sitemans that was at the LA prostrate cancer convention here locally .

Hoping we will start to get some answers. My husband hasn’t been able to sit, sleep or do much because of pain, has to be a solution somewhere.

Written by
Kimmilemo profile image
Kimmilemo
To view profiles and participate in discussions please or .
Read more about...
10 Replies
NPfisherman profile image
NPfisherman

Have the got a culture and sensitivity from the urine draining from the nephrostomy tubes yet? Need to identify what is growing in the culture and what medications/ antibiotics will work against it. They need to provide him with pain medication for now. Hope they get him feeling better soon.

Fish

Kimmilemo profile image
Kimmilemo in reply to NPfisherman

Ty, hopefully they will get something figured out tomorrow morning. Thank you for your concern.

Kim

Derektwright profile image
Derektwright

Prayers for answers

softwaremom00 profile image
softwaremom00

Hugs and prayers for both you. I hope he feels better soon and you get a chance to rest.

Softwaremom

Kimmilemo profile image
Kimmilemo in reply to softwaremom00

That’s sweet. Ty

Kimmilemo profile image
Kimmilemo

Well nothing much happened today. People really don’t want to mess with you if they didn’t do the original surgery . Although these were the docs that saw him in the hospital for his original renal failure. I remain hopeful , hoping Mayo and the hyperbaric chamber he will start next week will give us more hope. My husband sister in law passed away in her sleep last night from years of fight with Parkinson’s disease and most recently sinus cancer . She was 58 only. We all have some kind of fight. Hope you and your husband and children had nice holidays together.

Litlerny profile image
Litlerny

So sorry to hear about your hubby’s (and your) ordeals, and your sister in law’s passing. She was so young! I know it’s easier said than done, but keep the faith and try to be strong.

Hopefully your trip to Dr. Gregory at the Rochester Mayo will be fruitful. My Jax Mayo, Dr. Tan, works closely with Drs. Gregory and Keon. You will be in good hands there.

My thoughts and prayers are with you both!

Kimmilemo profile image
Kimmilemo in reply to Litlerny

Thank you for the information! Same to you also. Yes his brother is devastated they married when he was 17. But he’s also been her caretaker for 20 years due to the Parkinson’s. Every days a gift for all of us!

j-o-h-n profile image
j-o-h-n

Oh GOD... Please answer their prayers, they definitely need your help.

j-o-h-n Saturday 01/12/2019 12:22 PM EST

Kimmilemo profile image
Kimmilemo in reply to j-o-h-n

Thank you , the power of prayer has graced our family with many miracles. Our prayers are with you John.

You may also like...

Good news from visit at Mayo

my chloine c11pet scan and MRI November 29th at mayo. They showed that my bone Mets on spine had no...

Update from my husbands SP Aug 2

PSA and MO check end of OCT. We get our care at CTCA in Zion Ill, both times DX We live in Saint...

Husband Just Diagnosed

My husband was diagnosed with metastatic prostate cancer in March 2018. His PSA was 1900, Gleason 7

Dr. Kwon at Mayo

institution like Mayo? A man in my building is doing his PCa treatment at Mayo JAX. I mentioned Dr....

The struggle is over for my husband at 64

My beautiful husband succumbed to complications from prostate cancer this morning at 4:21 AM. If you