My husband, 68 years old, was diagnosed last April and had surgery in June. He was told to wait as his psa was 6.3 up from 4.5 a year before. He had a biopsy anyway and had a gleason score of 8. Urologist wanted radiation. He opted out of that and went to Mayo, had a prostatectomy and bladder reconstruction (from a benign tumor) .They said with radiation, that would have been too difficult, likely. (lucky he didn't do that) All looked good clear margines, vesicles, lymph nodes, scans ... but in Sept psa was .44 and in Dec 6.5 . (clear Choline and Mri scans in Sept) They ordered Lupron and 7 weeks of radiology in a few weeks. He requested an appt with Dr. Kwon and now will see him shortly and was put into a clinical trial comparing psma to choline scans. He will not be getting Lupron or radiation now, it appears. (can't be in the study with them) I've read with interest, all the good stories and sad stories and it gets overwhelming as to know what to do.
What seems a little upsetting is the care in some places ... our neighbor is dead from this, another dying ... with what seems like really poor care. My husband had to request PSA tests and they often said it wasn't necessary... and had a terrible time getting the only urologist to send records to Mayo. My husbands has dreams about how unfair it is that some people get good care (like we think he does) and others get a few hormone shots and go home. One with radiation and told he was cured ... and never checked again... after we suggested it, he gets checked and PSA is high. Somehow everyone treats it as if it is a fairly inconsequential illness... and from the stories here, there is a lot more awareness that should be done to save lives. Very upsetting to see younger men that no one ever thinks get this. Mayo told our son, 30, to start PSA at 40 yrs old ... and start a Mediterranean diet.
Sorry so long... Thank you to all of you that post things, I've learned so very much. Still don't know what the best plan ever is, but when the radiologist at Mayo said there was only a 30% chance it would be effective... he opted out of that.