Husband DX 2008 with APC Gleason 8 No Mets
Three months of radiation followed by Lupron
Reoccurrence DX Feb 2018 Gleason 8
SP surgery done on Aug 2
Results - margins positive reached the neck of the bladder
My husband has had a hard go of recovery. He has been to the ER five times . Twice for kidney stones (he never has had) once with bladder infection after they took the catheter out after two weeks. And then twice last week for pain of the new catheter they put back in two weeks ago. Lots of blood and not draining properly, they had to redo the catheter Thursday. Still complains of being sick at his stomach.
He goes in two weeks to hopefully get his catheter permanently out. They say the blood can be from the radiation he had years ago. He has been off work since July 4th, and Dr have him off till Nov 5 .
My main concern is his psa did not get to under 1 and since the margins are positive they talked about doing Lupron next when he goes back for his next PSA and MO check end of OCT.
We get our care at CTCA in Zion Ill, both times DX
We live in Saint Louis MO
I feel uneasy with just the offer of Lupron they mentioned something about castration!
If this was you those that have great knowledge. What would you do next?!
Thank you in advance
Wife and caregiver of Mel