I think a lot of it has had to do with just some lucky biology and responses. Initial ADT took the PSA down from 5,006 to 1.0. The Provenge around year 2.5 as my PSA was climbing again may have some effect, but who knows? The added Xtandi 24 months ago brought PSA back down from 95.0 to 1.2 again, and it around 2.2 now. I'm on no "special" diets.
What is the one thing that has helped you over the last 5 years ?
Is it a) prayer b) diet c) exercise d) cancer drugs e) excellent MO f) luck g) any other ??
I ask because I have been told (just a couple of days back) that I have perhaps two years to live and I am very lucky maybe, just maybe five. That too, after taking ALL possible treatments currently available.
Would love to hear from you, if you so choose. Thank you.
I'd say the thing that has helped me most over the last 5 years has been the emotional/social support from my loving spouse/caregiver and some local support groups that I/we attend. Yes, I've had some luck with treatments/responses, and the benefit of some learned second opinions, but, regardless of how many treatments I may or may not have gone through in this period of time, ... the Healing non-medical stuff seems most important to me.
Thank you, ctarleton, much obliged. Your answer provoked a lot of thought in me and I actually agree with you that the "healing non-medical stuff" is really really important, perhaps, arguably, the most important thing. Thanks very much, ctarleton, much obliged.
I am a new comer helping my best friend with his new diagnosis. Thank you for your reply to my post . Congratulations to your 5th year. There will be many wonderful and healthy years for you. Enjoy.
Although we are all different and give different answers. It's the news that helps us continue. Congratulations and I look forward to your celebration of 10 years. Ill stand here
Lupron "forever", Zometa for bones, did Provenge a few years ago, have been on added Xtandi for two years now. Less energy over time. Background fatigue. Lately, some transient episodes of irregular heart beats & associated medications for that have been worrisome. I also just had a pretty large Mohs surgery for a recently diagnosed melanoma on my forehead. "They got it all." So now I'm back to dealing with only one deadly cancer again. Ha. Ha. I'm doing OK, all things considered. There are still things to laugh about and hugs to share.
I'm so late Charles but I'm so happy for the 5 year mark! WooHoo!!!! .....that is simply WONDERFUL after such a high psa! You've given back soooo much too! YOU GOT THIS! Keep celebrating life
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