Call for dietary recommendations whil... - Advanced Prostate...

Advanced Prostate Cancer

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Call for dietary recommendations while on Lupron

LF27 profile image
LF27
31 Replies

Interested in feedback/recommendations for diet while on Lupron. Recently got 2nd of 3 scheduled 3 month shots, and noticing some growth around the middle...

Be great to hear about any recommendations for breakfast, lunch & dinner, or just your list of things to eat and not to eat. Thanks.

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LF27 profile image
LF27
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31 Replies
Canoehead profile image
Canoehead

In my personal opinion Nal is generally right. What is troubling is how ignorant most doctors are on the issue of nutrition. I live in metro Chicago, and I still haven’t found an integrative doctor who understands how nutrition interacts with cancer.

Keto, Vegan, Paleo, Mediterranean all have something to recommend them. What they have in common is some caloric restriction and significant restriction of processed sugar. So I think we are all guided by the succinct words of Michael Pollan, “eat food, mostly plants, not too much.”

LF27 profile image
LF27 in reply toCanoehead

Thanks CH. Agree w your comments on the lack of integration of nutrition with standard care. Dana Farber recommended "heart healthy". Hence, I value additional input from you and all of the thoughtful participants here.

LF27 profile image
LF27

Thanks Nal. And, as I recall, you're anti eggs, chicken and dairy, yes?

ITCandy profile image
ITCandy

Is cottage cheese safe for us stage 4's, in your opinion? Like whey protein isolate?

LF27 profile image
LF27

Sounds great! Chicken and eggs "in", in small doses.

And how about flour-less breads like this - 7 Sprouted Grains Bread

Crafted with seven grains that include: Barley, Brown Rice, Corn, Millet, Oats, Rye, and Whole Wheat.

cesanon profile image
cesanon

Estrogen & weight bearing exercise

Wassersug profile image
Wassersug

The ADT book has a whole chapter on diet for patients on ADT. The book's recommendations are evidence-based, which is why the book got the formal endorsement of the Canadian Urological Association. The diet chapter was primarily written by Cheri Van Patten, the senior nutritionist for the British Columbia Cancer Agency.

RJ-MN profile image
RJ-MN in reply toWassersug

Would you please reference which "ADT book" book you mean so that others can find it? Thanks.

jmurgia profile image
jmurgia in reply toRJ-MN

Richard Wassersug authored the book.

Sankirk profile image
Sankirk

Watch treating advanced prostate cancer with diet. Part 1 and 2! People think vegan, low oil, is extreme, but I think Lupron is

pjoshea13 profile image
pjoshea13

Nala,

"hamburger and 2 scoops of cottage cheese"

dairy+meat is kosher?

-Patrick

jdm3 profile image
jdm3

Stop drinking beer and switch to bourbon old-fashioned.😎

I try to avoid dairy (I use almond milk) and eggs (egg whites occasionally). I eat lean red meat (venison, bison) and fish (salmon, sardines). I agree with the above that you need to cut out sugars and other carbs for the most part, but remember, life is a balance. Enjoy a scone every now and then or good bread with olive oil.

AND, exercise. Keep moving. Weights/resistance training is good too. I have been on ADT for almost a year and still trim, but my torso is hairless 😳 which makes everything look different.

Good luck.

grahaminator63 profile image
grahaminator63 in reply tojdm3

i like your style! I will get right on those bourbon old fashioned's.

Break60 profile image
Break60 in reply tojdm3

Lol agree that lack of hair ain’t that bad and love daily workouts!

LF27 profile image
LF27 in reply tojdm3

Thanks jdm3, Almond milk is my go to, and I'm working on backing away from the sugar and carbs. Amen on the balance life, too. Need to keep living and enjoy life!

Ben2 profile image
Ben2

Thanks for your frequent, measured input. I read them all. After Gleason 8 and radiation + 10 months lupron in 2014, I've gone vegan, cut out most sugar and lost 40 lbs.

My PSA stays at 0.1. In your opinion, would adding cottage cheese, eggs or some chicken expose me to a greater chance of relapse?

FCoffey profile image
FCoffey

What Nalakrats said, especially with regard to choosing wisely among responders.

I avoid dairy as much as possible but that's for me, not everyone. I did find some docs with real knowledge of nutrition, and they tested me rather thoroughly. I'm quite allergic to casein - milk protein. Many people are somewhat intolerant of lactose, milk sugar, but for me it is the protein, which means no cheese, milk from any animal, etc. Clarified butter is OK - its all fat.

Once I eliminated casein from my diet, I was literally a new man. My gut took about a year to heal. I never knew any better; I had always felt that way. Now when a bit of casein slips in (milk gets added to the damnedest things) I know within 4 hours and feel it for 36.

Again, that's just me. But people are allergic to all kinds of different foods. A leaky gut is very bad for you, no matter what cancer you have, what drugs you take, or what diet you follow. Find a doc that has deep training and experience in nutrition and work with them. They call themselves functional medicine, biomedical medicine, sometimes integrative medicine but that last one covers a lot and doesn't always include strong nutrition.

Good luck.

LF27 profile image
LF27 in reply toFCoffey

Thanks FCoffey. Glad you figured out the dairy deal. All of this feedback is useful as we all chart our own regimens.

CalBear74 profile image
CalBear74

This will be a very different perspective. I view every meal as an anti-cancer treatment session.

My dx occured six years ago this November. Metastatic stage 4 (2 mets on the pelvic bones) with a PSA of 19, G8 I was told. Hormone therapy began immediately with Lupron and Casodex. The Casodex was dropped in 2016 by my Florida urologist when my wife and I moved here to be close to our grandchildren. My sole treatment has been ADT and now only Lupron. My new oncologist may change that but nothing so far has been specifically recommended. I am a very boring patient for my urologist and MO. I should mention I take IP6 (inositol hexaphosphate, aka "phytate"). Dr. AKM Shamsuddin of the U of MD Medical School has written an excellent text on IP6 and the supporting research. Dr. R. Agarwal of the U of Colorado - Denver has done numerous IP6 experiments on prostate cancer. Go to pubmed.gov. Ivana Vucenik, Ph.D. of the U of MD has also done many studies of cancer and IP6. She is a hematologist who has worked frequently with Dr. Shamsuddin.

nutritionfacts.org/video/ph...

As for diet:

These are essential videos for you to ponder:

nutritionfacts.org/video/tr...

nutritionfacts.org/video/tr...

nutritionfacts.org/video/be...

I should point out that I have become a vegan and Dr. Greger at nutritionfacts.org is essentially my health coach.

I have downloaded his app "The Daily Dozen" to guide my eating. I live within the boundaries of the 12 categories/hundreds of food choices he recommends. There are hundreds of choices supported by solid research he reviews in his short videos.

Do not miss viewing these:

nutritionfacts.org/video/ho...

nutritionfacts.org/video/dr...

You will also want to view Joel Fuhrman's videos on food and diet at youtube.com.

Good luck,

CalBear74

LF27 profile image
LF27 in reply toCalBear74

I bought the How Not To Die book, and have tried a few of the recipes in there. Thanks for the references and links, and take care.

cujoe profile image
cujoe in reply toCalBear74

I'm with CalBear. I did a dietary 180 about 8 years ago after being diagnosed with my first cancer, CLL.

I went from a 100% meat and potatoes guy to an ever-increasing "plant-based" diet. Was maybe, 75% first year, 80% next . . . and am now consistently 95% vegan. I also rely on the information feed from Dr. Greger at NutritionFacts.com and highly recommend the one hour video presentations that can be found at the website and the "How Not To Die" book. Apparently, he is currently working on a second book, which will be titled "How Not To Diet". Should also be a great read.

For those who want to challenge their current knowledge and positions on diet, I also suggest the following additional books and videos:

The China Study & Whole by T. Colin Campbell. (The China Study is the book that finally convinced me to change my diet.)

The movies Forks Over Knives & Food, Inc. Know what you eat, where it comes from, and how it is grown/raised.

In Defense Of Food & Food Rules, by Michael Pollan. He elegantly describes in detail the radical changes that have happened to the food we eat in the modern era and how well-intended reductive thinking has frequently lead to bad outcomes. BTW, all his other books are also great reads as he digs deep into the foundations of his subject matter and engages personally in whatever he writes about.

Be Well & Keep Learning - cujoe

Break60 profile image
Break60

Nal

Do you eat whole grain bread, waffles or cereal? What milk substitute do you use?

Bob

Captsquid2u profile image
Captsquid2u

Well for me I have found organic pasta 100% made from bean flour to be a great source of protein and it goes right through you ,not like regular pasta that your body doesn’t know what to do with unless you’re on a heavy workout regime. You just don’t want to over cook it or it g ets mushy. All the major pasta companies are starting to make it, just read the label and make sure it’s 100% bean flour. My favorite is made with chick pea flour. I’ve even made pizza dough with it when I get the urge for pizza and if you use imported mozzarella made from skim milk it’s not to bad of a cheat. Stay away from the soybean pasta, soybeans are loaded with pesticides. As far as vegetable I love Italian, Romano flat beans, they’re hard to find but will last a few weeks in the fridge and of course fava beans one of the few natural sources of B 17. You can buy these on line already shucked. I think what it comes down to with food is the simpler the ingredients, the less processed the easy it is for our bodies to process it and get the most nutrition from. I was vegan for two years before I started treatment, my psa was high 23 but stable and I lost 50lbs. Now after a 9 stage 4 Mets I’m on Lupron Zytiga and predinistone. I find , for me bike riding and light free weights help keep the body in better shape, usually take a vicadin to lower pain and extend my workout, but still hand put 10 lbs on after nine months of treatments and I do not eat a lot or unhealthy, probably the wine! But I’m still 25lbs lighter than I was 3 years ago. I also get shortness of breath from the drugs, they decrease the amount of oxygen your blood cells get. Good luck and force yourself to do what you have any feedback or opinions on my reply are welcome.

LF27 profile image
LF27 in reply toCaptsquid2u

Thanks Capt. I'll look into the bean flour pasta. Sounds like a great sub for the whole wheat pasta we've been eating. I'm keeping wine in the mix too! Cheers!

Captsquid2u profile image
Captsquid2u in reply toLF27

That whole wheat pasts is almost as bad for you as the regular white flour pasta, from what I’ve read. You won’t be disappointed with bean flour pastas, just don’t overlook them or they become mushy!

JimVanHorn profile image
JimVanHorn

I agree with most of this, but some of us have other diseases that control our diet. Like high cholesterol diet with low fat diet, no egg yolks, limited red meats, and never over-eating. I have a heart diet and I am on Coumadin with low Vit K (no raisins, tomatoes, ketchup, black beans, bran, nuts, chocolate, bacon, ham, sausage, hot dogs, lunch meat, or canned meats). I also have diabetes for 40 years so no simple sugars, or large meals. I have kidney problems so low phosphorus and potassium (no dark sodas, bananas, or oranges) So hurray for 3 ounces of fish or chicken with iceberg lettuce. So by eating a healthy diet and exercising worked for me. I was on Lupron for 6 1/2 years and now I am cancer free with a PSA of 0.00. I don't think my diet effected my cancer therapy as much as the 72 radiations and Lupron injections. I am 73 years old and a happy man! I wish you the best and make the decisions for yourself and do the best you can.

LF27 profile image
LF27 in reply toJimVanHorn

Thanks for the reply, Jim. Congrats on the 0.00 and happiness!

j-o-h-n profile image
j-o-h-n

All you guys are making me hungry.. so i'll have three scoops of chocolate chip ice cream instead of two.

Good Luck, Good Health and Good Humor.

j-o-h-n Monday 11/12/2018 7:38 PM EST

Break60 profile image
Break60

I tried plain almond milk. Taste like wallpaper paste ( I think) . Maybe vanilla flavored would work. Your egg and steak and broccoli breakfast blows my mind! Right down my alley!

LF27 profile image
LF27 in reply toBreak60

The vanilla almond milk is better...Hope it works out for you.

Break60 profile image
Break60

I love wine. What about you?

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