Hi everyone, have this op planned for Monday in UK and wondering if it will help me.
I can pee about 50% flow these days and the main reason they want to do it is to get a tissue sample for the Royal Marsden so they can genetically sequence the disease and see if I qualify for any drug trials (no biopsy done prior). But I do worry about urinary incontinence and likely infertility - I'm only 51, no kids yet, and wasn't really planning but still.. seems very final.
My unfortunate current situation is a climbing PSA over 100 (rising 10% month on month since on Xtandi) and what seems like a very limited to response to dual ADT. I have extensive bone mets which showed spreading on recent CT/ MRI (had radiation last week to prevent a T10 sinal cord compression). Never had chemo. Cheltenham General hospital offering only older ADT drugs (cocktail of bicalutamide plus others), or chemo or Radium 223.
Not really sure what direction to go in.. very limited options left it seems with such an aggressive PCa. Very scared about all this, but Royal Marsden keen to take me on as a patient once they get tissue sample.