Calcium intake

I have been on lupron for 13 years and discovered mets to spine and shoulder blade a year ago. Started Xgeva and Xtandi 6 months ago. I have taken extra calcium the entire time with fortified antacids but never knew how to take until 6 months ago my onco suggested I take 1,500 mg of calcium a day which I do with fortified antacids, OJ and almond milk. How much calcium does anyone take a day and in what form??

[Tall_Allen]

Excess calcium intake may be problematic, causing the cancer to progress FASTER. If your blood levels are too low, consider supplementing. Better yet, get your calcium from food - tiny fish bones (sardines, canned salmon, herring, anchovies) are a particularly good source.

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tandfonline.com/doi/abs/10....

[Hidden in reply to Tall_Allen]

Thanks Tall.

[efsculpt in reply to Tall_Allen]

Tall Allen- Have you found much on daily calcium supplement while on Lupron?

I've found 1300mg/day, but that's it.

I have a fellow PC friend that was put on Lupron only (no calcium) and developed osteoporosis.

Craig

[Tall_Allen in reply to efsculpt]

Osteoporosis is a common symptom of longterm Lupron use. However, calcium supplementation doesn't prevent it. A much better proven solution is Xgeva or a bisphosphonate like Zometa. Or you can try estrogen patches (with tamoxifen). Estrogen also has other benefits- prevents hot flashes, increases libido and suppresses testosterone. It's downside is that it can cause blood clots (less of a problem with the patches).

[Dan59 in reply to Tall_Allen]

I was under the impression either zometa or xgeva causes calcium depletetion, requiring calcium supplementation.

[Tall_Allen in reply to Dan59]

I think while taking Zometa or Xgeva, one should monitor both calcium and Vitamin D and supplement if needed.

[paulofaus in reply to Dan59]

That's what I was told by my Radiation Oncologist Dan. He said to take a daily 'Caltrate Plus' which is 600mg Ca and 1,000 IU VitaminD. I monitor my levels since starting Xgeva, but it never seems to change, so maybe I don't need it so I dropped it to 3 tabs/week.

[Dan59 in reply to paulofaus]

As Tall said it is important to monitor your Calcium, and adjust from there. Thge Calcium is on the CBC I beleive.

[Nicnatno in reply to paulofaus]

I'm with Paul. My Onc supports I take my calcium daily. He ruled out that calcium helps progress the cancer faster.

Nick

[abmicro in reply to Tall_Allen]

Estrogen parch should be done with a daily aspirin to prevent clots.

[middlejoel in reply to Tall_Allen]

Tall Allen, are you recommending the inclusion of Tamoxifen while on Estrogen Patches for the prevention of breast enlargement? breast cancer?

joe

[Tall_Allen in reply to middlejoel]

Gynecomastia - breast tenderness and enlargement. Tamoxifen (10 mg) blocks the estrogen receptors in breast tissue.

[j-o-h-n in reply to Tall_Allen]

As Iv'e said before you're a walking, talking and posting encyclopedia. And thank God you're around cause I sold my set in a garage sale which was a success since my sign read "LET MY JUNK BE YOUR JUNK".

Good Luck and Good Health.

j-o-h-n Thursday 07/26/2018 5:25 PM EDT

[tallguy2]

I use Prosteon, which can be ordered via their web site. It's a combination of calcium and other minerals.

Also, as Tall Allen suggests, there are other preventative steps that can be taken. I got a Prolia shot a few weeks ago, with no obvious side effects.

This was after the DEXA scan showed I am bordering between osteopenia and osteoporosis, all thanks to 5 years of ADT shots.

[Canoehead]

1300 strikes me as high. My MO, who seems to believe generally that some patients are over medicated, suggested I take 400 mg per day, in correct balance with magnesium and phosphorus. Life Extension has a good product, and I take half of the recommended daily dose.

[EdBar]

500 mg calcium daily for me and 5000 units of D per day, per Dr. Myers and now Dr. Sartor.

Ed

[podsart in reply to EdBar]

EdBar , has Dr Sartor added or deleted any supplements from your Dr Myers list?

[EdBar in reply to podsart]

Sartor just told me to stay away from fish oil supplements and B12, he said B12 feeds cancer. I still take curcumin, reserveratrol and Alpha Lipoic sustain for neuropathy from chemo.

[podsart in reply to EdBar]

Thanks EdBar

B12 makes sense but why not the fish oil supplement, especially a quality one?

[EdBar in reply to podsart]

I believe he is concerned about Mercury, etc.

[podsart in reply to EdBar]

Thanks

[Hidden in reply to EdBar]

and what if you are in the sun a lot??

[EdBar in reply to Hidden]

I'm in the sun a lot and still take vitamin D, according to Snuffy any excess is eliminated by the body. My bloodwork remains spot on in regards to calcium and vitamin D levels so I'm gonna leave as is and continue with supplements. Snuffy was really big in healing the sclerotic areas left from bone mets now that scans show no active disease. It is a big part of a long term durable remission - per Snuffy. Of course calcium and vitamin D help with that I also continue to use estradiol patches to help with ADT SE's and for bone health.

[William123Cooper123]

Plus magnesium, vitamin B-6, and vitamin K2.

[Hidden]

Thanks to all for info!!

[EdBar]

Diet mainly, plus lots of healthy oils per Meditteranean diet, bloodwork/lipid panel has been great.

[Hidden]

I am on xgeva and was told to by the research doctor to take Citracal 1200 + D3. Two tabs daily. I trust the doctor and staff at the research Department.

[RICH22]

i still eat eggs, chicken, animal products of all kinds. the most plausible explanation of what exactly cancer feeds on, imho being whatever the host feeds on. how else did the cancer begin in the first place? i do accept that the best way to go is vegan, but sorry, my QOL trumps going vegan. the time i'd gain without some mornings of bacon and eggs for breakfast just wouldn't be worth living.

so i boil eggshells about 15 mins to destroy any bacteria, then dry them out and grind 'em up in a coffee bean grinder til powdered. i wash down about 1/3 of a tsp. with a gulp of distilled water. almost pure CaCO3, in all its molecular, inorganic glory, with trace quantities of elemental and/or inorganic salts of magnesium, boron, copper, iron, manganese, molybdenum, sulphur, silicon, zinc, etc.

carry on, warriors. love you all, even the fools and dogmatic robots here.

[cwc1]

PSA 80 Gleason 9 some bone mets. After 2nd bone scan 6 months later bone mets not showing PSA went down to .2

I started on 6 months Lupron last month after being on monthly Firmagon for 11 months. No side effects, maybe mild hot flashes sometimes.

I take calcium / vitamin D3 1000/800 daily. This all am taking, not having any problems work 40 /52 hours weekly. Walk 20 minute treadmill and lift weights.

Good luck all in this journey

[Hidden]

Hi Rudyc

My dad wad given his first xgeva shot today with a recommendation for Caltrate plus D3.