I am 10 months into ADT (firmagon and erleada ) I work out 3 times a week .I take some supplement with my yogurt or smoothie.What do you think of Calcium ( bone boost ) and magnesium ( magnesium complex ) supplements ? Should I take them regularly ( like every day ) or occasionally )1-2 a week ) .I also have high cholseterol ( i don't take any drugs ) and use metroprolol 25 mg daily
Calcium and Magnesium supplements - Advanced Prostate...
Calcium and Magnesium supplements
Do not take any mineral supplements unless your serum numbers are low. Calcium may aggravate prostate cancer, harm your heart and kidneys. Get the minerals you need from food, not supplements.
Take statins for high cholesterol.
Hi Tall AllenWould you include calcidose sachets in above reply. Vitamin D3 800 UI a day. Hubby has advanced pc with Mets in spine pelvis and lymph nodes. Only treatment since diagnosis Firmagon and chemo psa start 597 after 3 rd chemo 1.41, waiting for results after 6 session in a weeks time. Prescribed this calcidose. We live in France. Treatment is good but reasons for treatment very poor. Any advice would be really appreciated. Thanks Ginny
That's an excellent response to chemo. It's easy enough to check serum calcium and Vitamin D to determine if supplementation is necessary. It may be necessary if he is taking Zometa.
Hi Tall Allen
Hi Tall AllenNo he is not on someter.
He was fit and well on no medication whatsoever when he was diagnosed. Only diagnosed with a psa test after pain in shoulder which he thought was golf related. He has only had Firmagon and 6 cycles of docetaxel. He had prednisone day before, day of chemo and day after. No other medication. He is however having nightly injection atm for thrombosis in his leg. Thank you so much for your above reply. Worried scared wife.
Hi Tall AllenSorry me again. Where do I check on his blood results for calcium serum. Thanks
On this patient portal to his hospital. His doctor makes them available every time he has a blood test.
Along with your D3 take some K-2 , D will be better absorbed.
Ginny, I know it takes a lot of time, but so worth it… have you tried juicing ?
TA…my b12 levels are still very low..now going on over a year below 100..(138/450 normal)..I’ve started taking b12 pills…I don’t really have many classic pernicious anemia signs or symptoms yet..but I suspect they’re coming..wish I knew what the Fvck is happening. B12 deficiency is serious. Any experience with this.
Pernicious anemia is often an autoimmune disease where antibodies destroys cells in the stomach that make intrinsic factor. Intrinsic factor is necessary for the absorbtion of B12. It is treated with B12 injections. Prolonged deficiency of B12 can lead to dementia.
Thank you for the adviceTall Allen.My vitamin D level was on the border last I checked but generally my blood results are good .I will stop the calcium I was not sure about that anyway and my joint pains are manageable.What do you think of AHCC and Pygeum supplements ?? are they useful ? I take 2 Vitamin D pills 2000 iu and Vitamin C 1000 mg also .I don't take statins cos I believe they do more harm than good.I don't eat meat and animal fat and don't eat fried food and my cholesterol has been steady between 200-240 for the last 20 years and I did not have HBP like most men of my age (64) My triglycerides is normal and my LDL/HDL ratio is 2.7 or less
I think when we are diagnosed with cancer, we have a natural impulse to do something, anything that might help. And it gives us the illusion of control. Who knows, I'm sure there is at least some placebo effect, and most of these pills are harmless. Some are not- some interfere with diagnostic tests, metabolism of other drugs, and there is no assurance that what is on the label is in the bottle.
Statins have proven benefit in saving lives. If your cardiologist wants you to take it, you do not know more about it than he does.
Seems like you are doing everything right.. good luck!
Tall_Allen, I was prescribed 1000 mg Calcium Citrate and 2000 iu d3 daily, at diag
in 2019. I've been following that regiment ever since. I recent was diagnosed with high cholesterol , I assumed it was due to the Eligarg, Zytiga, Prednisone cocktail, weight gain, & lack of testosterone. My Calcium levels at diagnosis were normal, even with the bone / bone marrow involvement. I read a lot of information here on this site that makes me question the care I'm receiving
I'm skittish about calcium ever since these studies:
aacrjournals.org/cebp/artic...
ncbi.nlm.nih.gov/pmc/articl...
My guess is they ordered this to minimize the effect that often happen when taking Xgeva
Yes, certainly a good reason. But even then, routine use without measurement is questionable:
"Studies seeking to show whether these supplements do increase the efficacy of osteoporotic treatment or decrease adverse events (that is, hypocalcaemia) are lacking. In either case, screening for vitamin D deficiency and seeking its correction should be warranted before the initiation of anti-resorptive treatment [e.g., Zometa or Xgeva]. Moreover, in a recent mendelian randomisation study investigating the role of vitamin D in maintaining bone mineral density, increased levels of vitamin D had no effect on bone mineral density measured by [DEXA scan]. However, increased 25-hydroxy-vitamin D was associated with a slight reduction in heel bone mineral density estimated by ultrasonography. These results are consistent with our mendelian randomisation findings of no causal effect of vitamin D levels on fracture."
I had never taken calcium or d3 prior to the cancer Diag. Heck, I rarely consumed milk or ice cream.
to TC,
I nominate you as one of the sailors on my boat...... No ice cream = my kind of buddy....
Leaves more for me, chocolate chip ice cream (two scoops) and two of yours.... Thanks buddy....
God Bless all of our past and present military service personnel.
Good Luck, Good Health and Good Humor
j-o-h-n Monday 05/30/2022 10:28 PM DST
Read carefully regarding the ice cream, it clearly states "Prior to Diag" I love me some ice cream now. Mint chip is my go-to
DX = Digital Exam. Does that mean you have to get a DX before licking?
Mint chip my wife and son's favorite....makes me want to heave.....
Good Luck, Good Health and Good Humor
j-o-h-n Tuesday 05/31/2022 7:02 PM DST
TA that’s a lot of food!
Are you referring to my statement above, "Get the minerals you need from food, not supplements?"
Our bodies and our microbiomes co-evolved over millions of years to extract the nutrients and micronutrients we need from foods we eat and excrete toxins and the rest. By taking supplements, we are overloading our bodies' protective mechanisms. The only sane way to look at supplements is as drugs. All drugs have unwanted side effects. We take only those drugs that have been proven to be safe and effective. Why would anyone do less just because it is cheap and purveyed by manufacturers who make their billions selling unproven, impure, or unsafe drugs to desperate patients?
It has left me nonplussed that quacks calling themselves "naturopaths" tell patients to take such unnatural quantities of drugs. I think we are better off working with the biochemistry evolution has provided us with than working against it. We should only take drugs that have proven safety, efficacy, and purity.
doctors recommend high D and Calcium on ADT. We personally do less than the recommendation but its supposed to protect the bones from the meds.
Perhaps those ill-informed doctors would benefit from your sharing this:
prostatecancer.news/2018/07...
I did a quick search today because my husband doesnt do well with melatonin and an article suggested magnesium supplementation to deal with being groggy after taking melatonin. Also ,articles about the calcium to magnesium ratio (the RATIO) affecting prostate cancer and metastasis.
There’s all kinds of nonsense on the internet. Stick to journal articles that are peer reviewed.
Yes,i run everything by plumbed and then look for more than one study. Im not as strict as you however and I'll take a chance on something that works in vivo if I think it might help and not cause harm.
Thank you for the advice. To be honest I am an amateur that just read and hear reviews and take natural supplements occasionally thinking it would help generally.I take vitamin D3 4000 a day and vitamin C 1000 mg the others usually whenever I make a smoothie or yoghurt which is not more than twice a week cos I am a terrible pill take .I can not swallow large pills so I empty them into the mix.Usually Artichoke extract for the liver and active hexose and recently I heard of pygeum for pc.I bought bone boost for the bones since I am on ADT but as Tall Allen suggested I think I will stop that since my joint pains are not so bad .My blood results actually are all good .I have a slight elevated carbon dioxide and basophils but apart from that all good.I don't have hbp .I take the metroprolol on my cardiologists advice for palpations and it is a very low dose and its been good for me. As you know Oncologists do not believe in supplements so no point in asking them but there a few internist nutritionists dr.s I follow on social media and try to learn . I eat mostly seafood and plant based .I do not take statins cos I do not believe in them .I have a cholesterol over 200 for the last 20 years ( my HDL is high enough luckily) and I manage through diet.I think statins do more harm than good but that is my belief and I respect other peoples opinions.
Thank you Nal!
Re: “I think when we are diagnosed with cancer, we have a natural impulse to do something, anything that might help. And it gives us the illusion of control”Think we learn that from an early age from when we had a flu or cold. Grandma and mother said chicken soup and drink plenty of fluids and eat some oranges. You will get better.
My experience anyway. 🤔
I had a stent placed 14 years ago and have tried to reduce my cholesterol and sat fat intake since then. I simply avoid egg yolks, using egg whites instead. I probably overreacted and cut down on cheese, ice cream, butter, and high saturated fat foods, animal fats, donuts, cookies, etc. In addition to simvastatin, my cholesterol dropped from 250 to 125 over a few months. Lately it went up to 240 due to egg yolks, but I lowered my cholesterol to under 200 by avoiding like before. Your body creates cholesterol but you consume it as well. Try to minimize the intake and keep your arteries clean. Exercise helps too. As for metroporol I take 25mg per day like you. I think of it as a dangerous drug. There have been recalls of metroporol succinate from India due to poor mixture control. Check your tablets for impurities. I had one with some black impurities in it recently that made me dizzzy for 15 mijnutes. The problem is with the circular tablets.
Vitamin tablets in my soup, make be go Poop Poop Poop...(excuse me Shirley)...
God Bless all of our past and present military service personnel.
Good Luck, Good Health and Good Humor
j-o-h-n Monday 05/30/2022 10:39 PM DST