My Prostate : I was 60 when my... - Advanced Prostate...

Advanced Prostate Cancer

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My Prostate

JohnCee profile image
8 Replies

I was 60 when my urologist gave me the "good news" and by December of that year it was confirmed that I had Pca. I survived Colon Cancer surgery seven years prior so thought that surgery was the answer and unfortunately it was not, as two months after surgery, my surgeon told me the really good news that my PCa had spread and that he and I would become good friends.

That was 8 long years ago !

I have been very fortunate to have run the gambit of treatment options including the initial surgery, the increasing ADT Treatments, the Chemo Treatments, the Immune Therapy, the Radiation and the Treatments for complications including Blood Clots, Blood Hemorrhage, Blood Infections, Lymphoma and Mobility Issues.

But I am still here.

My bloods are doing well and my PSA is stable at around 3.5 and I have been off Chemo-Jevtana for nine months.

I know that the tumours in my Lymph nodes and Bones will eventually win but I am not giving up and will continue to accept the treatments and side affects as an example to my sons, sons in law and grandsons and yes even strangers with PCa who need direction.

Life and disease are part of the human life cycle and God has made humans with the infinite wisdom to accept the benefits of life with the affects of disease.

Someday a cure for PCa will be found and hopefully my experience will in some way will have helped us reach that cure !

Ride like the Wind !

JohnCee

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JohnCee
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8 Replies
gusgold profile image
gusgold

John,

what treatment caused most of the complications

Gus

JohnCee profile image
JohnCee in reply togusgold

GUSGOLD

The docetaxel Chemo was the worst with numerous gastrointestinal side affects and tiredness and suppressed immunity !

LF27 profile image
LF27

Thanks for sharing your story. Inspiring fight and spirit. Best, Leo

JohnCee profile image
JohnCee in reply toLF27

LF27

My post was too medical as the constant theme I left out of my medical story is the roller coaster emotional ride that I and my family are going through with a constant stream of good versus bad medical news. I have learned to celebrate the good and bear the bad but the emotional tole it takes is something you have to learn to deal with as it’s a never ending series of changes.

Thank you for kind words Leo !

ctarleton profile image
ctarleton in reply toJohnCee

I can identify with the emotional roller coaster ride. My initial PSA was 5,006 and first line ADT brought that down to 1.0. After resistance developed, my PSA went back up to 95 as I consulted with specialists and had other procedures/treatments. Added Xtandi 16 months ago took my PSA back down to 1.2, and it's now at 1.8, after 4 years and 4 months of survival. Life is good, but sometimes it's not easy. We have found some on-going face-to-face support groups to be very helpful in dealing with the emotional aspects of things.

Charles

Olivia007 profile image
Olivia007

Amazing Thank you!

Suigeneris profile image
Suigeneris

Thanks John Cee. I needed your post today--- especially today. Thank you for taking time to share it.

j-o-h-n profile image
j-o-h-n

"Life and disease are part of the human life cycle and God has made humans with the infinite wisdom to accept the benefits of life with the affects of disease."

I will tell you what I always tell my son "NOW YOU'RE COOKING WITH GAS".

Thank You!

Good Luck and Good Health.

j-o-h-n Thursday 04/19/2018 5:40 PM EDT

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