Hi. I am new to the site. I am 58 and was diagnosed with advanced prostate cancer in July 2017. Gleason of 9. PSA 110. Spread to bone and lymph nodes. Decided to go to MD Anderson since it is a 4 hour drive and I have family in the Houston area. Had nephrostomy tubes placed the first week in August They did the job and were removed in December. Two months of degarelix shots then switched to Lupron. PSA was knocked down to 0.4 until Jan 2018, when it went up to 2.5. Oncologist recommended, and I agreed to begin DYNAMO clinical trial in Jan. In addition to Lupron, I am taking Zytiga, apalutamide, and prednisone. PSA dropped to 0.7. I find out in the next 2 weeks if I will continue with just the current regimen, or add chemo (cabazitaxel and carboplatin) or immunotherapy (ipilimumab).
I am blessed that I do not have any pain and am able to continue working. I also have a very supportive family. I am thankful that I have access to great medical care. I can not describe how impressed I am with MD Anderson. I suspect the other major cancer centers are just as impressive.
I have no idea what lies ahead since everyone is different. My approach has been to take one day at a time and say “ok, what is next.”
In the week and a half, I need to mentally prepare for the possibility of chemo or immunotherapy. I am a little anxious, but will be ready.
I apologize for the long post. I hope to add value in the future and have read some things that have made me think. Good luck to all.