problem with urgency to go: Hello all... - Advanced Prostate...

Advanced Prostate Cancer

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problem with urgency to go

MrJack profile image
14 Replies

Hello all, now I have recently developed a problem with "Urgency" to go pee...

I get the urge to pee more frequently now and when I go to the toilet I only can go a little

why do men develop this problem and what can be done? will it go away?

what do you guys know about the problem of urgency.

I had my robotic prostatectomy about six years ago and am on Chemo now with HT.

my psa is about 5, and I feel ok considering...... but I normally don't use of need a pad

my continence has been ok, only leaking a few drops here and there.

carry on men.

jack

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MrJack
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14 Replies
Scruffybut1 profile image
Scruffybut1

Hello Jack, when I started this journey my symptoms did not include peeing. Never had. But if I didn't pee I couldn't poo and vice versa. That's why I went for assessment and was already Stage 4, metastatic. Been OK no probs but cancer drugs have 'disturbed' my diabetes and latest meds from my diabetic doc (as warned) make me pee all the time but clearing my level of diabetes. Check your meds Mr Jack. Any changes? Even diet. God bless again...we are all brothers and sisters.

JamesAtlanta profile image
JamesAtlanta

Jack,

I had the urge to pee every hour or two. Really tough to get any sleep. I tried a couple of medications, by the only one that worked and did not completely dehydrate me is a drug called Myrbetriq. I take the 50mg dose and it works well much more manageable

Hope that helps! Best of luck with this!

James

pjoshea13 profile image
pjoshea13

Jack,

Scar tissue in the urethra would mess with your flow, but 6 years after surgery? Get it looked at.

-Patrick

Get a script for Flomax, 4mg, twice a day or two at once, I have used twice a day for 14 years. Spend 30 minutes in a hot sitz bath several times a day and pee away until it is under control. This is the best advice that I ever received from my Radiation Oncoligists' RN. If you don't you will end up at the hospital catherized to pee. Yes, it's a pain, but until the inflammation in your bladder and urethra are resolved, it us the best way.

With this said, if scar tissue is the issue, get ready for a roto-rooter job.

Keep kicking the bastard.

Gourd Dancer

George79 profile image
George79

Jack,

I belong to the every two hous to pee club. Not sure if it or the hot flashes from Lupron get me up first. I tried Myrbetriq but it raised hell with my blood pressure. I have scar tissue from an urethra resection after cryotherapy four years ago (bad choice) DRs advise further surgery could result in incontinence so I can live with intermittent sleep and occasional dribble. Maybe Myrbetriq would work for you.

Good luck,

George

Break60 profile image
Break60

See a urologist. I used tamsulosin (generic flomax) when I had a frequency problem and it went away.

Bob

j-o-h-n profile image
j-o-h-n

I tied mine in a knot....

j-o-h-n Friday 08/11/2017 2:33 PM EST

Break60 profile image
Break60 in reply toj-o-h-n

Haha mine is too small to make a knot!

Bob

MrJack profile image
MrJack

mine is too short now, I cant tie that small of a knot ;-)

MrJack profile image
MrJack

now I am thinking I should start up doing Kegels again, I have never heard "how long, how many years , or how often should I do Kegle exercises" ?? I did them in the beginning but stopped after the first year, since I am happy with my level of continence. and my urgency problem just started. ;-)

carry on men, be strong.

edd1717 profile image
edd1717

I pena morewhen I'm stressed or hear water running. I don't Peea all nite,hardly ever at nite other than before after bed

MrJack profile image
MrJack

yesterday I thought I could not pee for the doctor, but when I went into the bathroom and just saw the toilet I could not hold it and almost peed my pants I ran to the toilet and relieved myself a little

and I had almost none left for my urine sample, that's almost as funny as not being able to find my car in the parking lot, ha ha I am getting so funny I make myself laugh.

sgrama profile image
sgrama

My husband is having this problem at night and hardly gets any sleep either. His urologist put him on Flomax generic a couple of years ago and it worked pretty well but he still had to get up during the night to go then they also gave him oxybutnin I believe it's called and he's still having the problem. He didn't have any surgery for the prostate cancer but they did do radiation on him like 11 years ago now for it . He's had many other treatments since then especially since end of 2016 he had 7 chemo treatments (because it was in the bones now ) that ended April 2017 and then he was on zytiga and prednisone and right now he's doing the Provenge treatments and oncologist wants to give him more chemo soon because in Nov his PSA was 20 and then in Jan. this year it was 60 and then Feb. it was up to 92 and he just had it done this week and it's up to 250 already and we're terrified of what's going on with it and why it has rose from 20 to 250 in only like 4 months now. They gave him catheters on Wed. this week to use before bedtime but he still had to get up last night to go to bathroom. The urologist he's getting the Provenge treatments from Dr. Neal Shore in Myrtle Beach SC said he can't get the chemo for a few months after the Provenge is completed which will be on April 12th but yet the oncologist said he needs the chemo now and wanted to start it on the 19th so now we don't know what to do about all this because in the meantime his PSA will continue to rise rapidly.

Sxrxrnr1 profile image
Sxrxrnr1

Astonishing the number of Urologists and other medical professionals that appear so blissfully unaware of the cause of this problem for many men. I have often wondered of the men who have suffered thru medical procedures such a a TURP, when perhaps paying attention to diet may have relieved the problem.

A fairly undiagnosed medical issue, common to both men and women is Interstitial Cystitis whereas the protective lining of the bladder has been compromised, thereby permitting urine containing spicy or acidic food products to cause spasms to the unprotected bladder wall,,,thence sending signals to the brain that you have to urinate. Your stupid brain which normally receives these signals when a bladder is full,,,has no way of knowing that these spasm signals are from annoyances your bladder is communicating because of these acidic or spicy substances.

google.com/search?q=diet+ca...

Well worth a try for a few days to go on a very bland diet,,,no pepper, no wasabi, no lemon aide, no caffeine, no alcohol,,,,,etc, the list is very long, to find if this may help.

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