I have been reading and responding to you wonderful men (and some women) on this forum. I am so grateful for this place to come and share and learn. Here are my stats: 12/2013 DaVinci, planned to radiate the bed but psa went higher after removal. No lymph node involvement but yes to seminal vesicles. As you can imagine I have an appendage that no longer functions as originally intended. Cancer bastards had decided my bones were a fine place to set up. A sodium fluoride PET scan showed 3 very small spots. Year 2 showed 5 spots on sacrum, 1 vertebrae, left & right hip bones. Bone scan showed individual spots of activity. Year 3 bone scan revealed 1 new met and significant enlargement of one other.
I am scheduled to talk with a radiologist next week about adding radiation to my regimen. I have 6 bone mets and am currently pain free. PSA keeps going up 1-2 points each month. Currently at 27. My bone scan showed a marked difference from the one 8 months ago. The previous scan showed individual points of light in my pelvis area. Current scan showed the entire pelvic bone area as one mass of light. Onc Doc talked about 2 avenues of radiation delivery: orally for a systemic treatment or external beam type.
As my colon, bladder and other organs are all packed in my pelvic region I am concerned about unintended consequences of damage to surrounding tissue. I don't want to wear diapers yet the oral method can affect white blood cell counts. Not sure which way to go? As with all of my past treatment decisions I feel like I am being asked to step off a cliff and trust. Oh great men and women of the prostate world I am looking for your guidance and opinions. Thank you in advance for your time and experience. Charlie