Advanced Prostate Cancer
4,537 members4,382 posts

Well what hell

2009 I was diagnosed with PCa g 3+3=6. Did Active surveillance for three years plus taking Avodart. PSA kept climbing slowly, when it hit 7 I decided to have another biopsy ,same results as the first two cores out 12 positive but this time scored a g4+4=8 decided to have surgery. Post opp psa was 0.60 needless to say I was scared -+@!less was immediately put on casodex and zoladex and three months later 36 rounds IGRT. Remained on zoladex till Feb 2015. PSA had been bouncing between <0.01 and 0.05 Stopped zoladex 18 months ago testosterone was 10. Had my blood work done last week......drumrollllll.. Testosterone 500, psa 0.01!!!!! It took me a good half hour to finally open the envelope my hands were just vibrating from the anxiety expecting the worst. Still no libido and dead from the waist down but with these results I can live with that. just don't understand why my libido hasnt returned .

My nookie days are over,

My pilot light is out.

What used to be my sex appeal,

Is now my water spout.

Time was when, on its own accord,

From my trousers it would spring.

But now I've got a full time job,

To find the ****in' thing.

It used to be embarrassing,

The way it would behave.

For every single morning,

It would stand and watch me shave.

Now as old age approaches,

It sure gives me the blues.

To see it hang its little head,

And watch me tie my shoes!!

6 Replies

Now that you see your treatment having good effect, and that T level is good, your desires may find space to re-emerge.


What lovely poetry!! I think that I'll have it tattooed on my

I only wish that I could give you some of my own libido, for which I have absolutely no use now. In spite of more than three years on the testosterone blocking ADT, and then on top of it a bilateral orchiectomy, I still have libido, and get erections regularly (not strong enough or long-lasting enough to do anything with, even to masturbate), but I have no wife or partner, and am too fragile and weak for sexual activity anyway, with osteoporosis and a high risk of fracture.

But congratulations in that you are in remission......Hallelujah!! That's the most important thing. In my case, it would take a miracle to send me into remission, but I'm always so very happy to learn of others' success in beating back the cancer.



Thank you cerircwin, you you've lost so much and still offer what little you have your remarkable.

1 like



Great poetry and very true!


What I don't understand is with my ( T) being up I still suffer from the bloody fatigue, I thought for sure I would have more energy by now anyone have any insight on that.


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