Hi all! Sorry for the long message! I’m looking to see if anyone’s been in same position as me or for some advice really...
I’ve had a bit of a nightmare the last 14 months. I’ve had a vulval cyst which grows in size to the point in becomes too painful to sit, have sex and do anything above a slow walk.
I have had 4 ops now where it has been drained by excision, marsupialisation (twice) and word balloon catheter. Each time it returns. It’s been exhausting to be honest. I have endo as well which doesn’t help but that luckily has not been too bad recently.
My previous hospital told me after my 1st operation that it wasn’t a recurring bartholin gland cyst, but a rare mesothelial cyst. This was confirmed by MRI & histology.
Fast forward to now. Moved home in last few months and it recurred during that time. I had my last surgery, an I&D and word balloon catheter placed with the new hospital who are convinced the last recurrence was a bartholin gland cyst. I have given all my gynae records from previous hospital confirming the other cyst. So they have ordered a pelvic MRI with contrast which I’m having next week.
Long story short.. I am sort of hoping they’re right - at least this way if it is the bartholin gland I can push to have it removed. My gynae is pretty reluctant to do a gland removal as apparently it’s a horrible recovery. But, the thought of this recurring all the time and my future being lots of smaller operations is just too much.
Has anyone had their gland removed? How was the recovery?
Also I’ve had a MRI without contrast - what is one like with contrast?
Is anyone in a similar position to me and unsure of their options or just has some advice for me as I’m really at a loss at the moment!
Thanks all so much!