I knew I had Endo but just diagnosed with... - PCOS UK (Verity)

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I knew I had Endo but just diagnosed with PCOS

Kate01234 profile image
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Hi

So here's my background....

I had awful periods when I first started my period and after a year my doctor put me on the pill to regulate them. I stayed on the pill until I was 25 when I decided it would be a good idea to give my body a break, how wrong was I!! 6 months later I had a couple of large cysts on my ovaries which had to be removed and I was diagnosed with endometriosis. I was then put in a pseudo-menopause for a year because somehow it had caused kidney cysts - I had blood filled cysts on my kidneys which they said isn't documented with endo but it cleared up as a result of my endo treatment so to me that speaks for itself. I was on the pill every since.

Years later I forgot to take my pill on holiday and me and I boyfriend ended up with beautiful little girl as a result. I had always been told it would be very hard for me to conceive so it was a shock but we were both very happy.

So 5 years later we would like another child and a I came off the pill in January. My periods have been erratic, I have put on weight (9 lbs which isn't that bad from what I've read on here), I suffer really badly with bloating and cramps (doubled over in pain and waking all the time at night). So I have finally been sent for a scan and I was all geared up for it to be my endo. I was told I have a small cyst on right ovary that appears to be endo but to come back in 6 weeks to confirm if it is, but my left ovary was covered, and I mean absolutely covered in follicles (I'm getting flash backs to the image!!). This did make sense because my ovulation tests were showing I was only ovulating every 2 months.

I haven't seen the doctor yet for their feedback so what I'm looking for is guidance on what I should ask the doctor?

I saw on the NHS website that you can have an operation to remove them but is that worthwhile?

I would be grateful for any guidance on how to get pregnant with both these conditions?

I was wondering if I should just miss out all the heartache and confusion and opt for IVF as I'm 37 now?

I started no dairy and gluten 4 days ago and already the bloating has gone. I still have sharp pains but nothing like I was having before and I figure that could be my endo. I would really recommend cutting these out to people as a way to help with the bloating and awful cramping!

Thanks everyone x

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Kate01234
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Hols969 profile image
Hols969

The one advantage of pcos is that our egg quality remains better for longer so age 37 is fine. Because you have a child you will not qualify for much in the way of fertility treatment.

You can have your cysts zapped and it can help you conceive but I am not sure what is available as you have a child, I know they still give clomid (fertility drug) even if you have a child but I am not sure whether they would do an op. So I think you need to see your GP to find out what is on offer. Age is not an issue from a fertility point of view (I conceived Noah when I was 36).

It is not uncommon to have both pcos and endo

Kate01234 profile image
Kate01234 in reply to Hols969

Thank you so much for replying.

It's really good to know about my egg quality; it gives me hope :)

As for the fertility treatment I can appreciate why the NHS are restricted on what they can offer me as I am fortunate to have a child already. I feel better now knowing what to expect so thank you for taking the time to explain, I really appreciate it.

x

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