PCOS UK (Verity)
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constant fatigue

Hi, so over the last year now i have been going back and fourth to the doctors (local GP 1 who i see regularly) with tiredness and increased sensitivity to cold. i have had most blood tests done now, things like my thyroid have been check diabetes all your normal sort of ones and they have all come back clear.

In December i was then having shaking episodes along side the fatigue which i take naps for and go to bed early as a 21 year old university student its not normal. However in December it was noted that my neutophil count had dropped so it was monitored, i was then passed on to hematology (hospital doctor) where further tests have been run still no clue and i am still being monitored.

In the interim some new symptoms emerged like excessive thirst resulting in lots of peeing i also had constant nausea which would come and go along with stomach pains but my ultra sound has come back saying my abdominal organs are all fine and hunky dory!

Recently i have been going gluten free this has relieved the symptom of feeling nausea's but i still have everything else going on.

When i was tested for celiac i was already on a gluten free diet, as the doctor (different local GP 2) i saw to get the test done said i didnt have to include gluten back into my diet i chose not to, i have since asked my doctor in hematology to find out if its worth having a retest but include gluten back into my diet this time?

My thyroid is going to be re-tested but other wise the only thing left re low neutophil count is to have a bone marrow test carried out which neither me or my doctor want to do if we can avoid.

In addition to this i have been told that i have PCOS despite not having any cysts but have blood work to account for it as well as irregular periods. I have been seen by endocrinology about thirst and frequent urination all the bloods came back clear there too.

My local GP 1 is thinking it could be chronic fatigue, or some other sort of IBS bowl problem as this is the only other route we haven't explored yet.

I eat very healthily have plenty of fruit and veg dairy meat I try and exercise regularly if i'm not tired then i will go to the gym for about an hour mix of cardio and light weights, if i'm tired then i will go for a gentle walk but more often than not ill have to have a nap at some point in the day and ill be tucked up in bed by 9:30 most nights.

If anyone has any ideas what else i could try or suggest having looked into it would be greatly appreciated as me and my family are starting to struggle with what we can try.

2 Replies

I'm sorry to hear your story. I am similarly suffering tiredness, but this is more probably due to my insulin resistance due to my PCOS.

Have you had your B12 and iron levels checked? If they are low, it may be worth taking supplements. Similarly for low vitamin D.


yeah i had them taken in February and everything was fine and hunky dory , when looking last night on the ones ive had done my b12 was 402, ferritin 36, folate 11.5 but i have no reference ranges for any of these results although when ive asked hematology who performed these tests he said they were all normal.

My local GP when i discussed taking an iron supplement said im definitely not anemic and to no take iron supplements as i have larger red blood cells...


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