Livido rash

[Sarahjh2004]

Morning All

just a quick question.

I have HUVs and am on multiple drugs plus high oral and intramuscular steroids. Last week my consultant was asking about hives. I used to get really bad hives before I started taking all of.the drugs. I now get livido markings which I know can be another vasculitis that can be attached to tbe original....rare but possible. He got me to look at some pictures amd it was pretty clear cut that I get the livido - the veins swell and your skin looks like marble.

Has anyone experienced this??? I only ask as the Drs are struggling to control my vasculitis and I have been going downhill for several months.....we have asked are they treating the right thing but if I have a secondary it might explain the challenges...sorry not such a quick question after all...

Thanks

Sarah

[Wellsie]

Hi Sarah

I get livido reticularis along both my arms (I've got PAN). Whilst it is quite unsightly it is not painful of annoying. I tend to find mine is worsened by extremes of temperature.

Do you experience peripheral neuropathies?

I believe most people here are a or have been treated with a mixture of prednisilone and cyclophosphamide or rituximab dexpending on their own condition.

Good luck and I hope you feel better.

[tracynoe]

Hi Sarah

I have livido reticularis I get it all over by body but it is worse on my legs, feet and hands. It is something that has never gone although with treatment it has faded. I also have peripheral neuropathies. I take 8mg pred and 2gm mmf per day along with other drugs. I was told on Friday that my consultant had never thought that I would ever be able to get down to 8mg pred and that I will probably never be able to come off it. It has taken 7 years to get to this stage and it has only been in the last 12 months that I have at last begun to pick up, so not a quick improvement, but at the moment I am stable.

Hope you get the right treatment for you soon.

Tracy

[JennyH-M]

I've had this sort of skin all over my legs since childhood. Was diagnosed with ANCA pos vasculitis 40years later!!

[Sarahjh2004]

Thanks guys....... I will ask the consultant what he and the rheumy team what they think and find out if it changes anything.

I'll let you know how it goes...

Sarah x