My daughter aged 39 had 2 mini stokes a mth before she had a major stoke. She went straight to the doctor who did a CT scan with no evidence of stroke, she had serve headaches after the second one he diagnosed her as a rare form of Migraine 2 weeks later I nearly lost her. The Hospital did CT scan and nil they suspected an overdose we tried to tell them she did not after 14hrs and a MIR they told us her right side brain damage was irreversible and she had clusters of damage to the right side . They had no answers she was sent to PA in Brisbane fortunate that one doc had seen this before and diag Cerebral Vasculitis, after 3 weeks she is still in high care she came of a ventilator last Friday and has a trackie in. High doses of steroids daily and chemo drug every weeks are prescribed. They say she has had a rare stoke from the vasculitis and im lost to what is going to be her future.
I can not find info on survivors and the expected out come for her. They say she can not be rehabbed if she can not understand she flickers in and out of understanding. Early days I know, but I need help on finding survivors of this deadly disease. Please help