I am in the unfortunate position that I have just been diagnosed with prostate cancer,
Only went into remission for my GPA at the beginning of the year
What a bugger
I am waiting on appointments with oncology and surgeon to discuss the best way forward- has anyone been in the same position and had treatment for the cancer, can you go through radiotherapy when immunosuppressed. I am on azathioprine
waiting on appointment with my rheumatologist to discuss this
I’m hoping they found it in good time for you, I’m sure they will have as we have so many blood tests et etc. I’m wishing you the best of luck 🍀🍀🍀🍀🍀🍀🍀
Thanks johnnyboy
Hi stuc , im sure you have alot of questions at the moment. I had a lumpectomy last year with radiotherapy. Im on rituximab infusions which i had to stop for a year while i had surgery and treatment. My rheumy and oncologist decided this was for the best. I was really relieved to start back on treatment again!!My thoughts are with you , i hope all goes well 🙏🏼🙏🏼
Thanks weathervane
Sorry to hear you are in the same double club as me. I had a prostatectomy back in February . The surgeon said because of the risk of infection it would be preferable to stop my Mycophenolate. My Vasculitis specialist felt there was too greater risk of Vasculitis relapse stopping Mycophenolate so I continued with it. Thankfully I got by with just a wound infection and a UTI. It looks like I now need salvage radiotherapy so I guess the same question is going to be raised by the oncologist when I see him in a week and a half's time. I guess it is a case of balancing the risk of one against the other. Good luck with your treatment.
Thanks Chris, that makes sense, when I went for the biopsy, urologist told me to stop the azathioprine but I contacted my rheumatologist who said to carry on with them
Hi Stuc, I had breast cancer this year, I would say share the surgery guidelines from vasculitis U.K. with your surgeon. I had complications with my surgery but the surgeon thinks the vasculitis wasn’t connected but I’m not too sure. I only found the guidelines afterwards. There are also less invasive techniques for the surgery you may need so I’d google all options or speak to any relevant charity helplines. I had a standard surgery and really wish I hadn’t, there were alternatives they didn’t offer me which would have been less intensive so do ask them for all your options. Best wishes
If you haven't already found it, the Prostate Cancer UK has an excellent website for information and nurses you can contact. There is also a discussion forum like this one but I guess the chances of finding someone with vasculitis who has been through it is pretty slim. I am still ANCA positive so my consultant believed the risk of pausing maintenance medication was too great. If you want to private message me to ask any PCa questions, happy to help if I can. Chris
Thanks Chris, I did have a look at the prostate cancer website, it gave a lot of useful info, good luck with your own treatment
My last boss and his brother both had prostate cancer. I'm not sure what this treatment is called, but both had radioactive pellets inserted into the prostate. No hair loss, no other ill side effects. Both easily beat their prostate cancer. It was a simple and fast process. Prayers sent your way. You've got this! I just googled it. (Brachytherapy (also called seed implantation or interstitial radiation therapy) uses small radioactive pellets, or “seeds,” each about the size of a grain)
Thanks ICE, yes, this is definitely the easiest option, the only downside to this is if any cancer cells have traveled outside of the prostate, the won’t be hit
Right. My last boss, his doctor did the "wait and see" option for a year. His PSA numbers changed very little, but my boss didn't want to wait any longer. So he talked the doctor into the implants. He has been cancer free for about 6 years now. His brother was diagnosed a year ago and currently cancer free. I wouldn't freak out over this type of cancer. I know it's easier said without being told that I have cancer, but this one has a very high success rate. I had high white blood cells last year and early this year. My dr screamed cancer. I refuse to hear the C word. I was just diagnosed with hypothyroidism that was misdiagnosed for 7 years. It did a lot of damage. I refused the bone marrow testing out of fear of being told " you have cancer". Luckily though, my thyroid treatment has dropped my white blood cell count. My psa is often checked. That would be the one cancer that I wouldn't fear.
For your information prostate cancer is very slow growing. A cancer diagnosed today would have started at least ten years ago. Any theory about a connection with the Covid vaccines and prostate cancer is totally unfounded.
It used to rake years to form. Shooting in proteinacious growths that deprive tissues of oxygen and vital nutrients is cancer. It's merely an unfounded claim the body could degrade it.
This is a good breakdown
arkmedic.substack.com/p/wel...
It's already been in the news, spike protein causes penis shrinkage and erectile dysfunction. Need it to get systemic for that.
Respiratory is gastrointestinal route, where Peyers Patches can tell t cells and blocked from systemic. Immune system remembers. Only mutations get caught after, if that.
Vaccines are systemic. Bypassed Peyers Patches straight to systemic.
The lipid nanoparticles knowingly accumulate in spleen, pancreas, testes, ovaries, they cross blood brain barrier, since 2016.
Pseudouridine is a marker suggested for prostate cancer. The vaccines are N1-Methylpseudouridine or a genetically engineered microorganismal version of the human form of Pseudouridine. Adding the nitrogen and methyl group 🚀 makes sure it gets there and makes growths quickly.
Billions were at stake.
Alzheimer's protein steeped in 16 years of fraud. It's a spike protein.
Now a lipid discovery about cancer and yet these are all lipids....
It's clear by now. People are dying and huge increase in cancers and neurodegeneration.
Hey Stuc. I had the same unfortunate situation as yours. My GPA was diagnosed in July of 2017. I went through two 4 week sessions of Rituxan in 2018 and stayed on Azathioprine and Prednisone until September of 2019. In May of 2019 I was diagnosed with prostate cancer and went through 27 sessions of IMRT in June and July while on the two immunosuppressants. No complications. The worst part of it all was the 4 month injection of Lupron. It actually lasted about 6 months and I felt like a girl the whole time. 😊
GPA and osteoarthritis
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Just diagnosed with GPA and trying to keep positive 
