Hi All,I was diagnosed with Systemic vasculitis around 1 year ago,have looked on here quite a bit and I feel more should have been done.
I am extremely weak,my kidneys hurt ( but nothing shows on scan ) I have not had a biopsy, I was on a high dose of pred now down to 1mg and soon will be taking none.
I wake every night with a dead arm and when I move my arm and hand hurt.
I also get pins and needles in my hands.
My rheumatologist came up with the systemic vasculitis and when I have asked what type of vasculitis I have I really don't think he knows,I have pushed to see a nephrologist and have an appointment on June 20th.
Any advice would be very welcome.
Thank you in advance.