For those with an interest RAIRDA (Rare Autoimmune Rheumatic Disease Alliance) launched a new survey for RAIRD patients

[John_Mills]

For those with an interest RAIRDA ( Rare Autoimmune Rheumatic Disease Alliance ) launched a new survey for RAIRD patients to tell more about their experiences during the COVID-19 outbreak.

Lupus

Vasculitis (including Behcets)

Scleroderma

Myositis

Sjogren's Syndrome

Filling in this survey will help us inform the government about what matters to people with RAIRDs. docs.google.com/forms/d/e/1...

[Lone-wolf]

Have filled in the RIARDA survey. No problems concerning my care so far. Today had a telephone consultation with my neurology consultant in absence of my clinic visit. All well!

[PaulinemcC]

I have filled in a RIARDA form , I’m doing ok & having frequent phone consultations with rheumatologist nurse practitioner & still having bloods every 3wks for mycophenolate, Stay safe & well .