dla

[quinnster]

hello,im new to this forum,i have wg,diagnosed may 11 ,affected kidneys and nose. sufferered with mobility problems since,extreme shortness of breath,but was refused dla. i have an appeal coming up,just wondered if anyone has had similar problems and could office advice on the appeal . many thanks

[PatriciaAnn]

I'm sure others will come and tell you about their appeals and give you some guidance. In the meantime The Trust has professional membership of an organisation called "Work and Benefit" and they have lots of information on applying and appeals which we can forward to members. Susan Mills is your lady. Just go to the Trust's website - vasculitis-uk.org.uk and under contacts you will find John and Susan's e-mail address.

Patricia

[quinnster]

thanks patricia,i will contact them thanks again

[braindamage]

My local advice cetre were very helpful. Completed the forms for me and attended the tribunal with me and presented my case.

I was awarded high DLA and mid mobility component.

Great team, I recommend you do the same.

ATB

[John_Mills Volunteer]

I can send you some documents tomorrow that may help. I have your email address also I think that a couple of members of the community maybe able to help as they have already been through the appeal process I will be back tomorrow. Susan

[Ezrela]

My heart goes out to you, I waited in an appeal for 22 months before it came up, dont worry, they will backdate it for you, hopefully you should get a mobility allowance, I was diagnosed with Systemic Vasculitus for over 3 years, then last week I went to Barts and got told (without a single blood test) that I never had Vasculitus in the first place, even though it is written all over my records, I cant walk either for shortness of breath, and my nose is constantly stuffy, have a lot of sinus problems, and sleep problems constant chest infections and I cant get around, and I am sticking to it, I will also press to continue as it comes up for review in Jan 2013 again, and if Im not well I will insist, my advice to you is to press forward and keep insisting, when you go for the appeal one tip, take (2 STICKS) with you not just one, let them see you as you really are, go at your worse, otherwise they will not realise, 2 sticks is what you need and just be your natural self, I pray you win this and get what you rightfully deserve good luck!!

[AndrewT]

All I can say is 'good luck', I had a benifit stopped, some years back, but had it reinstated, on appeal. My case is slightly different to yours, but I do wish you luck!

Andrew

[John_Mills Volunteer]

I have sent your email onto someone who maybe able to help and who already has been through the appeal process. My own laptop is due back tomorrow so will send you some documents to look at that may help. Susan

[quinnster in reply to John_Mills]

thanks to everyone for all your help ,very much appreciated

[NannyAlli]

I was told to re claim after my 1st claim was turned down.

It was easyer and no stress involded like the appels.

I do wish u well but on the form was told to put my worse ever day down which i did and got it for 2 yrs..

Claimed again and now have it indefenent.

So sometimes its easyer to re claim after 6 months than go through the appeal

best wishes Allison x