How rare am I? : What club do I belong to... - Vasculitis UK

Vasculitis UK
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How rare am I?


What club do I belong to? What's lurking?

Autoimmune disease "club" for certain. "Your complicated" is what I've been told—"smoldering" and "atypical presentation" when discussing Granulomatosis with Polyangiitis (Wegener's). Possibly Central Nervous System (CNS) vasculitis. "We should consider treatment."


Likely, my next step. If inclined, please share your experiences. The doctors say they've had great success. My mother's nickname for me was "worry wort"; at age 57, and my mother long gone, I still carry the mantle of worry. Some things you just can't change

The World's Rarest Colors (

Maybe not freaks. The forums here have been life changing. Without all the wonderful "colors" I would be lost. The information shared—whether it be on topic or not—has kept me going. Lots of dark days. The color all of you have provided has helped lift me out of the dark. Thank you.

With gratitude,


P.S. I wish I was as gifted and witty a writer as mamici1

1 Reply

Ahhhhh, you are too kind Canygirl61! Thank you for reading and supporting my writing!

mamici1 xxxx

And yes, you are are rare!!!!

“There is nothing more rare, nor more beautiful, than a woman being unapologetically herself; comfortable in her perfect imperfection. ~ Steve Maraboli

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