Cpan to pan???: Just been on my mind lately... - Vasculitis UK

Vasculitis UK

7,815 members6,819 posts

Cpan to pan???

greg31 profile image
2 Replies

Just been on my mind lately. How long or if my cutaneous pan will turn to actual pan?

My question is .. is there anyone here who was diagnosed with çpan that turned into pan???? And if you were diagnosed with pan how long have you had it ?

Written by
greg31 profile image
greg31
To view profiles and participate in discussions please or .
2 Replies
asilanna profile image
asilanna

Hi Greg. I've cpan and apparently if uv cpan it is very rare to get pan but if uv got pan it's easier to get cpan.

greg31 profile image
greg31 in reply to asilanna

Hey asilanna. Thanks for your reply. So you are saying what I already assumed.just confused as it's so rare not many know about it. But I was told by one specialist that I have pan but different symptoms than others who have it. Mine seems to be veins and pain with the odd ulcer. But lots of pain.where as others involve kidney and more serious organs.?? Curious if you don't mind me asking. How long have you had Cpan and what sympoms you have? Thanks again for your reply. It helps me cope with this.

You may also like...

Pan and vasculitis

so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual...

PAN

Hi; new here and great to find this place. Recently been diagnosed systemic vasculitis, which both...

Has anybody heard of or suffer from a cutaneous type of PAN?

involvement). Has anybody been told the same or actually suffer from PAN or cutaneous PAN? as I...

Anybody here with Pan

that had taken months to process So my question is I suppose how was you finally diagnosed with pan

Azathioprine (imuran)

thank God. My question for those of you who are on Azathioprine- how long have you been on it. :...