Cpan to pan???: Just been on my mind lately... - Vasculitis UK

Vasculitis UK

7,876 members6,908 posts

Cpan to pan???

greg31 profile image
2 Replies

Just been on my mind lately. How long or if my cutaneous pan will turn to actual pan?

My question is .. is there anyone here who was diagnosed with çpan that turned into pan???? And if you were diagnosed with pan how long have you had it ?

Written by
greg31 profile image
greg31
To view profiles and participate in discussions please or .
2 Replies
asilanna profile image
asilanna

Hi Greg. I've cpan and apparently if uv cpan it is very rare to get pan but if uv got pan it's easier to get cpan.

greg31 profile image
greg31 in reply toasilanna

Hey asilanna. Thanks for your reply. So you are saying what I already assumed.just confused as it's so rare not many know about it. But I was told by one specialist that I have pan but different symptoms than others who have it. Mine seems to be veins and pain with the odd ulcer. But lots of pain.where as others involve kidney and more serious organs.?? Curious if you don't mind me asking. How long have you had Cpan and what sympoms you have? Thanks again for your reply. It helps me cope with this.

Not what you're looking for?

You may also like...

PAN

Hi; new here and great to find this place. Recently been diagnosed systemic vasculitis, which both...
Wellsie profile image

Anybody here with Pan

I went to the hospital yesterday to see the Vasculitis specialist who feels I could have pan I have...
Perkles profile image

Pan and vasculitis

so I just found out today I have systemic polyarteritis nodosa. Finally got in to an actual...
greg31 profile image

Ritixumab does it work on pan?

Did you have to wait long time to get ritixumab? My consultant said it has to go in front of a...
asilanna profile image

Has anybody heard of or suffer from a cutaneous type of PAN?

Hi my dermatology consultant has told me he believes I may have PAN, I have no other symptoms...
xxbluebooxx profile image

Moderation team

See all
Suzi70 profile image
Suzi70Administrator
JaneLE profile image
JaneLEAdministrator
Charlie_Harper profile image
Charlie_HarperAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.