Just getting through the day. Do you find this a supportive site/ informative site?

[Mougette]

Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the RItuximab dose its magic! One weary lass.

[Wizzi]

yes site is very very helpful, which kind of vasculitis do you have? Are you in hospital?

[ZiggyDiego]

This site is great for information. I also find the Facebook Vasculitis Uk forum great for support. Methyl pred is worth waiting for: it kept me going till I got my Rituximab last autumn. Take care...

[Mougette in reply to ZiggyDiego]

Thanks Ziggy - usually have 2 grams but consultant has been ill - weekend the usual ... Monday not far away - systemic symptoms and it's so active.

[Mougette in reply to Mougette]

not a facebook gel - should be in hospital : live down the road from Adds. where I'm under the special vasculitis team. Day treatment in infusion clinics or admissions if this doesn't do the trick.

[Mougette in reply to Mougette]

Severe refractory organ involvement degenerative - the pits!

[Mougette]

all vascular systems involved - connective tissue ANC

[Mougette]

I'm so exhausted.

[Mougette]

and my gut is totally comprised (lungs, liver, heart, skin... sinus...) you know the story

[Mougette]

as for the afflicted feet/ hands - sight for sore eyes, gothic house eyes - avid horses?

[Mougette]

avid should read avoid - typos, not wearing glasses - what about Vassculits support groups (regional) ?

[ZiggyDiego]

The Cambridge Vasculitis support group is meeting on April 21st. I'm hoping to go for the first time - been too ill for previous meetings. I think the details are on the Vasculitis Uk website. Hope they get you sorted today.

[Alliand]

Dear Morgette, I feel for you; I actually cancelled an appointment with my hairdresser; too tired to go. I think you will find the website a big help,