Have you received Rituximab for treating your Vasculitis?

[John_Mills]

If you have, please you could you contact John, [e-mail] or telephone [phone]... John will explain... this could be very important for the future use of Rituximab...

[JennyH-M]

I was spared Rituximab as my symptoms improved with a increase in steroids. However, its still on the agenda if/when my problems return. Am still very interested to hear what you have to say, though obviously not going to trouble you with a phone call.

Kind regards

[John_Mills Volunteer]

we are interested in peoples experiences with Rituximab to collect evidence regarding the use of Rituximab and what people have to say about it. It is for a very good reason and John will explain to everyone who calls or emails him.

[John_Mills Volunteer]

We have received about 50 responses to this appeal, which is amazing!! John has now received instructions on what to do next so will be in touch. If there is anyone else out there who is taking Rituximab or has had RTX please get in touch, it really will benefit everyone who has vasculitis in the future for having access to Rituximab. thank you

[Alison-cov]

Hi John & Susan

I have received a number of Rituximab infussions since 2006, I am due another one within the next 4-6 weeks (ish) as currently starting to flare. I know that my renal consultant has spoken to David Jayne a number of times on the best route to go with me, I also went to Cambridge in 2006/2007 to see him in clinic ref my WG symptoms.' I have received over 10 rituximab infussions and more recently I need to also follow the rituximab with pulse cyclo. I hope that I am able to help, please send me any details.

Kind regards

Alison xx

[jaycee928]

Hi John

I was diagnosed April 2017 wth WG and within 2 weeks suffered an Aorta aneurysm . In May I had two Rituximab infusions and just this week in November .,If I am able to help , please contact me

Kind Regards

John Carter

[Jan22]

I had Rituximab a year ago and I am just starting a second course of four infusions. I feel very lucky as I am now down to 3mgs of prednisolone and am relatively well, I have wegners. Jan