When I saw the rheumotologist in October he said I have vasculitis and he believed I had GPA (Wegeners.
I now have pain in my face - particularly across my forehead and under my eyes, this pain is on both sides of my face and radiates to my teeth. My sinuses get painful when the air is cold too.
I have had x-rays of my teeth, all good (well... I snapped one and need a crown as the filling fell out of another which has no nerve) but nothing showing anything that would explain the pain.
I have been taking plaquenil for a year, also take paracetamol and I added naprosyn when the pain got severe in January this year, I tried reducing the naprosyn (after discussing with a GP) to no avail because as soon as I reduce it the pain returns with avengence.
My GP is baffled, he suggested neuralgia but he would expect this to be on one side of my face not right across both sides. He checked my jaw to see if the pain was coming from there and he asked about my teeth but was satisfied it's not that.
He referred me for a CT scan of my sinuses which I had and am now awaiting the results.
Anyone else out there suffer anything similar or can shed any advice or light on this puzzle?