HELP ME TO COME TO CAMBRIDGE VASCULITIS AND LUPUS CENTER! (ADDENBROOKS)

Please help me to get help. 10 months without name of my vasculitis and no treatment exept ASA and kortison. Nothing of them prescripted of my collegues. 

i am not rheumatologist, not lungdoctor, I am an anestetist. I cant vasculitis but I do can oxygentreatment. I know that normal pO2 is 20 kPa in swedish analyzers, NOT 10 kPa as my bloodgas is. My lungvessels were damaged JUNI 2015. Now I am dying in sufflocation and have multiple organ failure. And every kollegue refuses to give me oxygen, thou I tell them it will save my life. Organdamages can be cured with oxygen, nothing else.  Some male kollegues trie to lie to me and tell me that 8 - 9 kPa is normal. BULLSHIT. Every value less than 20 is wrong. In swedish analyzers.  The values are different depending the anlyzing method used. Different methods have different analyzers. 

3 Replies

oldestnewest
  • You can contact Vasculitis UK Helpline they will try and help with some information and guidance the email is John.mills@vasculitis.org.uk 

  • Definitely speak to John he will help you out! I'm so sorry you are feeling like this and your colleagues are not helping you, I am sure you will get help off John. Praying you will be better soon xxxx

  • Hi Tellu, 

    It may be the language barrier but I find your post a bit confusing. A pO2 of 10 is a normal oxygen level. If your colleagues are getting it wrong for you then it stands to reason that they are getting it wrong for every other patient in Sweden with a pO2 of 10, that's a lot of hypoxic patients. 

    Organ damage can't be " cured " with Oxygen, it's a supportive measure until the underlying cause of the lung damage is treated. 

    I am sorry you are having a hard time and feel that you have been poorly treated. I hope you will e mail John for advice. 

You may also like...