someone please help me to know more

[leah1970]

Would love to hear from someone who has had same symptoms, started with a blood like rash on palms of hands and pins and needles, also my nose broke out in lesions, then next day my feet went numb and rash on legs, I now two weeks later have pain in my legs and weakness and also I feel breathless. I have been told I have vasculitis but am none the wiser and off work which is worrying me as I do not feel well enough to go back. if anyone had the same thing please let me know as the doctor does not say too much. I would love to hear from someone with same sort of thing and know if this will go altogether. thank you

[hamble99b Volunteer]

hi leah, have you seen a consultant? if not, please ask for a referral.

if you go to vasculitis.org.uk , you will find a lot of information, including the "route map to vasculitis" book, which you can download.

please come back on and ask any questions you may have. sometimes it can be a bit quiet, but you will get a reply.

regards,

hamble

[leah1970 in reply to hamble99b]

Thank you kindly,

[HiveMind]

Hi Leah,

I had rashes on my legs and palms of my hands which were insanely itchy, before I was diagnosed. Also both my calves seized up (a Dr. Said I was having "stiff" muscles! Hah!)

[HiveMind in reply to HiveMind]

Oh nooo! Only half of my reply has been posted!!??

Leah, please PM me and I'll try and re-tell you what I was trying to say!

[leah1970 in reply to HiveMind]

Hi ya thank you for responding, tell me more did you have any other symptoms and has it gone now, as for stiff muscles well that's crazy, did you go on steroids?

[Suzym2u Moderator Vasculitis UK]

Can we ask where are you getting your treatment and who said you have vasculitis Leah? If you would prefer to contact John by email please do [e-mail] he will try and help with some advice.

Susan