someone please help me to know more

Would love to hear from someone who has had same symptoms, started with a blood like rash on palms of hands and pins and needles, also my nose broke out in lesions, then next day my feet went numb and rash on legs, I now two weeks later have pain in my legs and weakness and also I feel breathless. I have been told I have vasculitis but am none the wiser and off work which is worrying me as I do not feel well enough to go back. if anyone had the same thing please let me know as the doctor does not say too much. I would love to hear from someone with same sort of thing and know if this will go altogether. thank you

6 Replies

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  • hi leah, have you seen a consultant? if not, please ask for a referral.

    if you go to vasculitis.org.uk , you will find a lot of information, including the "route map to vasculitis" book, which you can download.

    please come back on and ask any questions you may have. sometimes it can be a bit quiet, but you will get a reply.

    regards,

    hamble :)

  • Thank you kindly,

  • Hi Leah,

    I had rashes on my legs and palms of my hands which were insanely itchy, before I was diagnosed. Also both my calves seized up (a Dr. Said I was having "stiff" muscles! Hah!)

  • Oh nooo! Only half of my reply has been posted!!??

    Leah, please PM me and I'll try and re-tell you what I was trying to say!

  • Hi ya thank you for responding, tell me more did you have any other symptoms and has it gone now, as for stiff muscles well that's crazy, did you go on steroids?

  • Can we ask where are you getting your treatment and who said you have vasculitis Leah? If you would prefer to contact John by email please do john.mills@vasculitis.org.uk he will try and help with some advice.

    Susan

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