This is me.: Hi I'm spudster,I suffer from g... - Vasculitis UK

Vasculitis UK

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This is me.

Spudster profile image
6 Replies

Hi I'm spudster,I suffer from g.a.d, depression, self harm and low sugar lower back probs due to lordosis. My other half of twenty years has wegners disease,sevre inflammatory arthuritis,cfs,fibromyalgia, degenerative sinal disease and more but will run out of space if I carry on I am a very quiet and paranoid low confident person.

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Spudster
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6 Replies
Alpsy profile image
Alpsy

Hi Spudster! This is me too! I'm so sorry u hav all these issues I admire u for coming on here and telling us all of this. I can sympathise with your depression, paranoid low self asteam, this is hard for anyone let alone all the rest u hav in top of that! I hav WG/GPA and had it for 14 years now it's my best friend now lol! I hav Diabetese Insipidus, Ostupenia, sinus & nasel probs as well as lungs. I've lost cartilage in my nose so I luk like Stevie Bruce lol! I've also piled on the weight so I have low self asteam which must ppl in here will I guess. This is a fantastic site where we are all here for each other and listen to wot each other says. So feel free to hav a moan, rant, scream, shout, talk, cry, be happy and everything else! There is Nurses and very experienced ppl on here who can help or point you in the right direction. I do hope that your Hospital can help you and enjoy this site! XXXX

Spudster profile image
Spudster in reply toAlpsy

Hi there,thank you for your reply. I was hoping to get some ideas for me and my partner. At the moment I have found he is getting withdrawn he likes to just stay in bed and now doesn't like to mix much before he used to love a natter. Anybody got ideas for pain relief or anything will help.

You won't run out of space.  Keep going if you wanted?  Interesting.  I have got something similar.. 😳 minus being withdrawn. 

Alpsy profile image
Alpsy

The only pain relief I am allowed is Paracetamol and Co dryamol for daily pain but I'm sure if you talk to the Doctors they may give your Partner something else. I'm sorry I can't b much more if help I just wanted you to know your not alone. You could speak to the Admin on here and John may be able to help you more than I can? Gud luck xxx

Spudster profile image
Spudster in reply toAlpsy

Thank you so much,it's nice to know there are people to talk too. You can chat anytime you like.

Alpsy profile image
Alpsy

Thanks Spudster! U may regret saying that 😉😂😂😂 

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