In my last two posts where I explained my symptons for possible vasculitis I received lots of helpful replies which pointed to possibly CSS. I am finally going to a specialist for a renal exam on the 29th August and can't wait to get a firmer diagnosis and hopefully medication.
Since my previous posts the 'flares' have really reduced, to a point where I can count the number of spots on each leg on my hands. I still feel tired and my weight has gone from just over 100kg to 87kg since the original flare. I have had to stop going to the gym as my main current symptons are joint/muscle pain. The weight loss is probably due to my eating habits whereby I have little interest in food. It's quite funny when people tell me how good I look (with the weight loss) yet I've never felt worse inside.
My main sympton is 'armpit pain'. This is the best way of describing it. I have constant pain in my shoulder, neck, chest and armpit. The pain seems to move around these areas and other than ibuprofen which allows me to sleep for around 4 hours before it wakes me up I just hope that if I am prescribed prednisolone (I think that's how it is spelt) that this finally removes it. I have stopped going to the chiropractor simply due to cost and also it doesn't seem to help, only makes it worse for a few days then returns to normal.
Has anyone here had experience of this (armpit pain)?
Oh just to add the hospital paperwork I was given when in Spain in March (where the original flare happened) had some interesting information. I translated it and found that my leucocyte level was above the 'normal threshold', neutrophil were exceptionally high, glucose was above normal threshold and my glomerular filtration GFR less than 60 or in the words of the spanish paperwork 'moderate decrease' level just above 'severe decrease'. I'm surprised they told me they couldn't find anything at the time as the paperwork clearly shows am issue!