my mum has been diagnosed with Churg Strauss and is under the care of a london NHS hospital. Her condition seems to have got worse over last month - she can barely walk now after long complaining of numbness and pins and needless in her feet and lower part of her leg. I am anxious that she is not being treated properly or correctly.
Her symptons started january 2013 with asthma and persistant coughing and was diagnosed in february this year after having raised eosonphil count in her blood and inflamed lining of stomach and losing considerable weight (due to not eating or drinking properly due to pain when doing so).
She is on steroids and mmf. which at the moment is 2 steroids and 4 mmf tablets per day.
My mums symptoms at the moment is barely being able to walk ( right leg first, now left leg) and pins and needles and numbness in feet. She also has for some time now suffered from ringing in her ears. She has started physiotherapy for her trouble walking, but I am concerned this is more a nerve problem? The doctors say it is unrelated to the disease and it is her muscles.
Her esonphil count is normal now and her asthma has got better. But other symptons seem to have got worse.
My mum is 65 years of age.
has anybody had similar experience with the disease? Can anybody recommend a health professional for a second opinion. I am very worried about my mum and that the diagnosis and or treatment is not quite right.
Thank you and best wishes to you all.