MCAS specialist in London?

[Redfleur]

I’m still struggling with pain in my ears and deafness. I’ve not been able to get on top of my Mast Cell attack. My GP is useless. I’ve got an appt at the hospital for hearing test but it’s way off. I had a mast cell attack on my bladder that lasted years and ended up having DMSO treatment. My ears feel like it’s the same happening over again.

[Catchya]

Dr Gratten works at St Thomas hospital, he is a specialist in MCAS. Private with a waiting list but worth maybe getting in touchN

[rjkb in reply to Catchya]

Guy's and St Thomas's is the NHS centre of excellence for mastocytosis. See link.

ashpublications.org/blood/a...

[Redfleur]

I thought I would update that I lost 50% of my hearing. Absolutely nothing wrong with my ears. Due hearing aids next year. It happened 6 hours after the AstraZeneca jab. So sudden and so painful and never went away.

[Redfleur]

Ended up losing my hearing. Still waiting for second referral for pressure, pain, chronic tinnitus and loss of balance with vertigo.